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  1. #1
    abandoning fly:yes/land:no's Avatar
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    optic nerve migraine and life/cycling reevaluation

    warning: long post, abridged version at bottom*

    so last wednesday, i did a training ride with the uc's cycling team. it was my first time on rollers for any meaningful time, but no i did not crash. anyway, after the workout, my vision starts to go kinda weird. the center of my vision starts to go gray. i drive home, and by the time i get there, there is kind of a wavy line in the center that is gone from vision. soon after that, my right eye begins to lose vision on the outside periphery. i am freking out. this has happened once before. it was also after a bike ride, but i thought it was just from not getting enough food earlier. i am freaking out. within 20 minutes, the disturbance is gone.

    thursday, i go to the doctor at uc for a referral to opthymalogist/mri/mra to see what is going on. she thinks it could be a number of things, including brain tumor/anyeurism. i get blood work done there, and then go to the opth later that day. eyes are completely fine, and he thinks it is just an eye migraine, but wants to be sure and says to have the mri/mra anyway. (a note: optic nerve migraines are not too big of a deal. a lot of people have them. they are fairly unpredictable and can be managed somewhat easily.)

    friday, i get my mri and mra done. not very pleasant considering how much i was freaking out. as i leave, i see a scan of my brain on the screen and think i see something that is not supposed to be there. needless to say, i freak out. big time. keep in mind, that i am not at al trained to read an mri, and recognize that radiologists are paid big bucks to do this, but i am hyper sensitive to this kind of stuff anyway, so that pretty much sent me into panic. to make things worse, it takes 24 hours for the radiologist to get the images analyzed and this is the weekend.

    saturday/sunday consist of me freaking out, not eating, not sleeping, and pondering what is important in life, mainly my family and my girlfriend (who btw, stepped up big time for me and was the only reason i didn't go insane-->i am taking her on a vacation this winter for her efforts) weight went from 148 to 143 from lack of fluid and food. like i said, i really freaked out.

    monday at around 1:30pm, my doctor calls with results from mri saying that everything was apparently normal. i was very happy. was able to eat dinner with the gf, her family, my family. big relief. made me rethink my obsession with bike riding. i remembered how important my family and my loved ones are to me. everyday is a blessing. i cannot tell you how blue the sky was today, or how wonderful it feels walking around without worrying.

    i am taking at least a few weeks off the bike to spend with loved ones, so i may not be around here too much during that time. i have one more test to do, very small chance the vision loss could be a precursor to ms in very early stages. if anything happens with this i will let you guys know. until then, good luck training everyone. give your loved ones a hug, and remember how fake a lot of our problems really are. oh, and thank doctors for doing what they do.

    * abridged version: i thought i might be really sick. it turned out i was fine (barring one last unlikely scenario). made me realize how much i love my family. therefore, taking time off the bike to be with them.

  2. #2
    Killing Rabbits
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    "You just had a near life experience"

    Be well.

  3. #3
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    Glad everything's turning out normal so far.

    As you get older this type of stuff happens from time to time. You'll learn not to freak out as much next time. Heck, once you get over the early thirties you have to go to the Dr. every couple of year just to get things cut off, things that have just started to grow on you that aren't supposed to be there.

    Shayne

  4. #4
    slow up hills kudude's Avatar
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    how old are you? I'm 24 and as far as I can tell i get the same things. Usually after intense workout when I don't eat enough I get "blind spots". After they clear up i usually have a headache. It's been going on since I was about 16-17. I'll go months without one, then I'll get two or three in a week. I've just made an effort to eat when I'm hungry and it's helped. I've been to the doctor once or twice but they don't ever order tests and more or less say "let's see what happens"

  5. #5
    Quarq shill cslone's Avatar
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    Good luck Bill!

    Grimm from A&F is going through some of the same crap right now. Looks like a blown pupil, but all MRI's are coming back clean.

    FS: Fuji SL1 frameset, 55.5cm toptube, excellent condition.

  6. #6
    Sensible shoes. CastIron's Avatar
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    Quote Originally Posted by fly:yes/land:no View Post
    warning: long post, abridged version at bottom*

    so last wednesday, i did a training ride with the uc's cycling team. it was my first time on rollers for any meaningful time, but no i did not crash. anyway, after the workout, my vision starts to go kinda weird. the center of my vision starts to go gray. i drive home, and by the time i get there, there is kind of a wavy line in the center that is gone from vision. soon after that, my right eye begins to lose vision on the outside periphery. i am freking out. this has happened once before. it was also after a bike ride, but i thought it was just from not getting enough food earlier. i am freaking out. within 20 minutes, the disturbance is gone.

    thursday, i go to the doctor at uc for a referral to opthymalogist/mri/mra to see what is going on. she thinks it could be a number of things, including brain tumor/anyeurism. i get blood work done there, and then go to the opth later that day. eyes are completely fine, and he thinks it is just an eye migraine, but wants to be sure and says to have the mri/mra anyway. (a note: optic nerve migraines are not too big of a deal. a lot of people have them. they are fairly unpredictable and can be managed somewhat easily.)

    friday, i get my mri and mra done. not very pleasant considering how much i was freaking out. as i leave, i see a scan of my brain on the screen and think i see something that is not supposed to be there. needless to say, i freak out. big time. keep in mind, that i am not at al trained to read an mri, and recognize that radiologists are paid big bucks to do this, but i am hyper sensitive to this kind of stuff anyway, so that pretty much sent me into panic. to make things worse, it takes 24 hours for the radiologist to get the images analyzed and this is the weekend.

    saturday/sunday consist of me freaking out, not eating, not sleeping, and pondering what is important in life, mainly my family and my girlfriend (who btw, stepped up big time for me and was the only reason i didn't go insane-->i am taking her on a vacation this winter for her efforts) weight went from 148 to 143 from lack of fluid and food. like i said, i really freaked out.

    monday at around 1:30pm, my doctor calls with results from mri saying that everything was apparently normal. i was very happy. was able to eat dinner with the gf, her family, my family. big relief. made me rethink my obsession with bike riding. i remembered how important my family and my loved ones are to me. everyday is a blessing. i cannot tell you how blue the sky was today, or how wonderful it feels walking around without worrying.

    i am taking at least a few weeks off the bike to spend with loved ones, so i may not be around here too much during that time. i have one more test to do, very small chance the vision loss could be a precursor to ms in very early stages. if anything happens with this i will let you guys know. until then, good luck training everyone. give your loved ones a hug, and remember how fake a lot of our problems really are. oh, and thank doctors for doing what they do.


    * abridged version: i thought i might be really sick. it turned out i was fine (barring one last unlikely scenario). made me realize how much i love my family. therefore, taking time off the bike to be with them.
    At the end of the day it kinda makes you realize that this is just a hobby and focus on stuff that matters. Personal beliefs may make some wonder for what purpose. I think the earlier such an epiphany happens to a person, the luckier they are.
    Mike
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    It looks silly when you have quotes from other forum members in your signature. Nobody on this forum is that funny.
    Quote Originally Posted by cedricbosch View Post
    Why am I in your signature.

  7. #7
    Senior Member tbdean's Avatar
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    Quote Originally Posted by kudude View Post
    Usually after intense workout when I don't eat enough I get "blind spots". After they clear up i usually have a headache.
    Is the headache on only one side of your head? This sounds like a classic Migraine with aura.

  8. #8
    Thor's dad Odin's Avatar
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    Quote Originally Posted by tbdean View Post
    This sounds like a classic Migraine with aura.
    +1
    I had my first migraine at 28. Vision went, speech went (I was thinking straight but jibberish was coming out) extremities went numb and all I wanted to do was vomit. Scary as hell... doc diagnosed all of the symptoms as the "aura" in a classic migraine. It lasts 20-40 min, everything goes back to normal and then the mother of all headaches kicks in.
    When my vision goes, it's a lot like you described but continues on until all of my vision has the wavy lines/colours.
    Good to hear everything's OK. Migraines suck.
    Contrary to popular belief, the plural of 'anecdote' is not 'fact'.

  9. #9
    Senior Member jkizzle's Avatar
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    had a similar problem over the summer, mostly before the bike when i was doing alot of weight lifting and cardio. had a headache that wouldnt go away for almost 2 weeks. it would phase in and out but if i thought about it, i noticed it was there, and when it was bad, i could barely keep my eyes open, listen to anything, eat, or hardly stand.

    doctor said it was a migraine and prescribed maxalt. it stopped that migraine, but i still get really bad bouts every once in a while, but thats probably due to my erratic sleep schedule and training due to architecture school.

    good to hear a fellow 'natian cyclist is alright, hope to see you at some of the regional races - or maybe on the road when i am back home visiting!

  10. #10
    Burning Matches. ElJamoquio's Avatar
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    Quote Originally Posted by Odin View Post
    +1
    I had my first migraine at 28. Vision went, speech went (I was thinking straight but jibberish was coming out) extremities went numb and all I wanted to do was vomit. Scary as hell... doc diagnosed all of the symptoms as the "aura" in a classic migraine. It lasts 20-40 min, everything goes back to normal and then the mother of all headaches kicks in.
    When my vision goes, it's a lot like you described but continues on until all of my vision has the wavy lines/colours.
    Good to hear everything's OK. Migraines suck.
    +2. My first was at 21. Skipped lunch at work, had a Snickers bar as a snack... back before I knew I couldn't eat chocolate. Result: couldn't type, couldn't see straight. Scary because you don't know what's going on.

    Even scarier when the doc wants you to get an MRI. It was a Friday before I was supposed to go on a vacation... 'Hey, you might have a brain tumor, why don't you get a CAT scan'. Uh, OK. Can I have it NOW?
    Last edited by ElJamoquio; 12-05-07 at 07:01 AM.
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  11. #11
    Newbie tender25's Avatar
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    try avoid chocolate. i have googled about migraine with aura and most of the sources mention chocolate could cause migraine.
    Go-Green...

  12. #12
    HMF
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    I hope the OP is still doing fine.

    Question for tender25. How did you come across this thread? Did you check the date of the original posting before replying? Are you a robot?

    (relevantly funny: at the bottom of this thread is a Google ad for Cool New Tees, featuring zombie t-shirts)

  13. #13
    abandoning fly:yes/land:no's Avatar
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    woah, old thread! it is kind of interesting to read something that i wrote almost five years ago. since it is bumped here is the update:

    i am doing very well. i haven't had a migraine since this episode in 2007. also, i am still with the same lady, and she is still fantastic. i don't race as much as i did in school, but i still train ~10 hours a week.

  14. #14
    going roundy round wanders's Avatar
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    reading it yesterday, my first thought was what had happened with gf. 5 years- I couldn't remember you mentioning since if you were married.

    glad to see you've avoided chocolate.
    Quote Originally Posted by CastIron View Post
    Damn.

  15. #15
    Resident Alien Racer Ex's Avatar
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    I get those with some regularity. Usually after a hard ride/race, when I go from outside to inside. Sometimes one eye, sometimes both. It's a beech trying to read any kind of label or when your wife asks you what you think of some area rug with a crazy pattern, because they all have crazy patterns. Usually 20-30 minutes later things go back to normal.

  16. #16
    Senior Member shovelhd's Avatar
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    OP, have you had an eye exam lately with a glaucoma test?

  17. #17
    abandoning fly:yes/land:no's Avatar
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    not in the past year. but i did have a thorough eye exam at the time of the incident (almost five years ago) and one since then. i used to hate the old school glaucoma test with the air poof. the touching thing is much better, but you have that stupid yellow numbing eye drop crap.

  18. #18
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    Quote Originally Posted by Odin View Post
    +1
    I had my first migraine at 28. Vision went, speech went (I was thinking straight but jibberish was coming out) extremities went numb and all I wanted to do was vomit. Scary as hell... doc diagnosed all of the symptoms as the "aura" in a classic migraine. It lasts 20-40 min, everything goes back to normal and then the mother of all headaches kicks in.
    When my vision goes, it's a lot like you described but continues on until all of my vision has the wavy lines/colours.
    Good to hear everything's OK. Migraines suck.
    Taller guy tried to block my shot from behind and reached over me catching the back of my head with his elbow. Couple hours later, driving home, I noticed there was a blind spot in my vision. within 10 min, the rods/cones bordering the missing area start freaking out and were causing short diagonal rainbow patterns.
    I started freaking out.
    Made it home. everything subsided, but I decided to hit the doc's
    by the time they got me in, I was in deep into the worst headache of my life.

    Then it started happening about once a quarter after playing full court bball.

    One night was the worst... as others said, my whole left side went numb. As that subsided it was replaced with a massive headache, much worse than the first occurrence and about 9 hours worth of puking and dry heaving.

    hmm, arguing with idots, getting poked in the eye (I still have a spot), 2 broken noses and 2 surgeries, dislocated finger, bruises all over my arms...now migraines? and that was all in the 'fun, easy-going' group...
    I stopped playing basketball.

    I go WAY harder on my bike then I ever did playing bball and haven't even thought about getting a migraine in years (till I saw this thread). Seems to be partially triggered by anger and stress.
    I ride right at my absolute limit, and I'm always really happy when I do.
    I think that last migraine was possibly combined with food poisoning.

    T

  19. #19
    Newbie tender25's Avatar
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    @HMF:I just googling about the migraine with aura or ocular migraine and end up to this thread.
    I hope everyone here can find their migraine trigger since i believe the trigger is unique for each person.
    im still struggling finding my trigger too and i have not get the migraine since i did chocolate diet 2 months ago.
    maybe this youtube link can help http://www.youtube.com/watch?v=CW53T...&noredirect=1#!
    Go-Green...

  20. #20
    Draught jwible's Avatar
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    Thought I had ocular migraines. Loss of vision temporarily in one eye. "swirling" contrast. General odd stuff. Turned out it was glaucoma. One month of drops and my pressures are normal and symptoms are gone. But the damage is done. Had a nerve index test this past Friday and a good chunk of my left eye is well below the norm.

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