Hi Pixie, I don't let anything people say get to me. Just because I don't complain and go about life like a normal person, many think I'm just looking for pity or an easy way to get out of doing things. I've been dealing with this for 20 yrs. I just got used to the symptoms being around. I have CFS, IBS, brain fog, memory loss on top off all the pain, burning muscles, numb fingers and toes and bad themostat to regulate my body temp. I am a guitarist by trade and the AC in the summer freezes me to the point where I can't feel my strings. It is frustrating, but I think the cycling is a Godsend.