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-   Adaptive Cycling: Handcycles, Amputee Adaptation, Visual Impairment, and Other Needs (http://www.bikeforums.net/adaptive-cycling-handcycles-amputee-adaptation-visual-impairment-other-needs/)
-   -   How Many Of You Have A Disability? (http://www.bikeforums.net/adaptive-cycling-handcycles-amputee-adaptation-visual-impairment-other-needs/194939-how-many-you-have-disability.html)

Rona 09-22-11 08:31 AM

I'm late to introducing myself here, but I'm on the Clyde/Athena forum a bit.

In a nut shell.... I have multiple gunshot wounds. My right butt cheek is pretty much gone and I have lower limb paralysis. I wear an AFO to walk. Like many others, I bike better than I can walk. If wear pants, most people just see a little bit of limping and I pass as "normal" (what ever that is).

When it first happened, I was an athletic active duty member. Now I'm overweight and trying to get back to a better level of fitness. I've recently gone car free about a year ago when I moved in with my new hubby. The worst part is over: learning to bike again, biking my first mile, biking my first 5 miles. Now for me it's biking over 30 miles and watching my eating. I love to eat.

Like some others here, because I pass as "normal" people don't understand that I'm disabled. I can bike but I can't carry or lift well, I struggle with stairs. I don't feel the bottom of my right foot well and often trip. Walking is improving, but not near normal level. Sitting can be uncomfortable with only half a butt. Standing causes swelling in my paralyzed limb. Cold can damage my leg and if my leg gets really cold, once that cold blood hits the rest of my body I can drop temperature very quickly and get chilled.

Biking for me has been a life saver. It gives me a sport I can do and its just plain old awesome.

GraysonPeddie 09-22-11 08:53 AM

My god that hurt. I hope you'll get well overtime. My prayers, thoughts, and condolences go out to you. Take it easy when riding your bicycle.

Neil_B 09-22-11 09:41 AM

Quote:

Originally Posted by Rona (Post 13262243)
... I'm just plain old awesome.

Fixed the post for you.

Rona 09-22-11 01:38 PM

Quote:

Originally Posted by Neil_B (Post 13262649)
Fixed the post for you.


LOL I'm not all that awesome. I just get up in the morning and put on my britches like everyone else does :P

And yes.. it hurt.. a lot. It was 18 years ago so I've had a lot of time to get better. The last 6 years have been the best. I'm so glad to be biking again. :)

Knittedrose 09-22-11 07:00 PM

I am blind (can see light and dark only) from a progressive eye disease called Retinitis Pigmentosa. I was diagnosed as a child, attended a local "sight saving school" in grade school. Many other disabilities there as well, kids weren't main streamed, back then. I attended regular public school in Jr high and HS. I was legally blind by HS. in HS I ran cross country, track, and wrestled. I Wrestled my first year of college, but was injured and had to quit for the season. I got married the next year and didn't do any sports for a few years. Then I returned to long distance running. I ran by myself, until it was no longer safe to do so, then ran with a sighted guide. My wife and 2 children used to come and cheer me on when I ran races. I ran many 10 K's 25 K's and 3 marathons. I had to give up long distance running when my knee was injured in a car accident. ( I wasn't driving.) I continued to run 10 K's, until we moved and I no longer had a sighted person to run with. My wife of 41 years, and I, now ride a tandem, tadpole trike. We rode our first group tour this summer ,a 6 day 283 mile ride across our state. We had a great time, in spite of rain 5 out of the 6 days we rode. This past weekend we completed a 50 mile ride, The Big Mac Shoreline Ride. The weather was perfect and the ride was fun, even though we ended up with 2 flat tires. We really enjoy riding together and hope to more group tours and independent tours in the future. Life is good. :)

Sgt Mac 09-22-11 11:33 PM

Yo Neil I have tried to upload photos on this site a dozen times, every time I get some kind of error message. I'm the last guy that wants to go messin around with my computer converting JPEGs down to something this site will accept. I've never had an issue on any other site accepting jpeg photos. My computer skills consist of email, google searches & that pretty much covers it so if my pics are too big, well they're too big.
Quote:

Originally Posted by Neil_B (Post 13251455)
Photo or it didn't happen. :-)


Sgt Mac 09-22-11 11:36 PM

Good for you Bro!
Quote:

Originally Posted by Sixty Fiver (Post 13245767)
Little update...

The body is still messed up but have finally seen a little light as after winning an appeal against the WCB, they have finally accepted fiduciary responsibility for their failure to act accordingly and should be receiving retroactive benefits for the past 4 years as well as a benefit guarantee and coverage for pretty much anything I may need in the way of physio, medications, and supports for things I cannot do.

And a month ago I married the love of my life.


Sgt Mac 09-22-11 11:42 PM

As for you blind guys/gals or nearly blind, I don't know what to say. Thats pure, raw tenacity, Bully for you!

Sixty Fiver 09-23-11 12:00 AM

Quote:

Originally Posted by Rona (Post 13264009)
LOL I'm not all that awesome. I just get up in the morning and put on my britches like everyone else does :P

I figure that being able to put on my own britches beats have someone do it for me. :)

I count my blessings every day as the injury I suffered could have resulted in much worse consequences as that organic shrapnel could have killed nerves that control other important functions and would have left me in far worse shape.

The greatest blessing has been my wife... we had just started our relationship when the accident happened and she has been with me through every step and been there to pick me up... she has fought some serious health battles in her life and is an inspiration to me.

She has beaten cancer twice and suffered from debilitating endomitriosis for almost 2 decades and was able to have that addressed surgically this winter and is now getting some post op physiotherapy... she has never been so free of pain as she is now.

She attributes much of her own good health to cycling which is something she has been doing nearly every day for many many years.

GraysonPeddie 09-23-11 12:06 AM

Quote:

Originally Posted by Sgt Mac (Post 13266219)
Yo Neil I have tried to upload photos on this site a dozen times, every time I get some kind of error message. I'm the last guy that wants to go messin around with my computer converting JPEGs down to something this site will accept. I've never had an issue on any other site accepting jpeg photos. My computer skills consist of email, google searches & that pretty much covers it so if my pics are too big, well they're too big.

Consider using imageshack.us to upload a photo and post a photo here.


Mine looks like this:

[URL="http://imageshack.us/photo/my-images/684/mytricycle.jpg/"][IMG]http://img684.imageshack.us/img684/6193/mytricycle.th.jpg[/IMG][/URL]

...which becomes...

http://img684.imageshack.us/img684/6...ricycle.th.jpg

I hope this helps.

Rona 09-23-11 04:50 AM

Quote:

Originally Posted by Sixty Fiver (Post 13266271)
I figure that being able to put on my own britches beats have someone do it for me. :)

I count my blessings every day as the injury I suffered could have resulted in much worse consequences as that organic shrapnel could have killed nerves that control other important functions and would have left me in far worse shape.

Oh yeah.. I know what you mean! I'll do the britches myself, thank you!!!

I'm pretty thankful my wounds were right were they were too. It could have been a whole lot worse for me as well.

Our spouses are pretty rawk on people. :D

Chris516 09-23-11 07:26 AM

Kudos' to the OP for asking this question.

Mine are:

1. Ventricular brain aneurysm that developed in utero
2. Congenital hydrocephalus that is a result of the brain aneurysm
3. Epilepsy that is a result of the six brain surgeries I had from 8mths. to 9yrs.(I have not had one since 1976).

I have a 24-Speed racing bike and, I ride in heavy traffic on 40-45mph roads.

boneshake 09-23-11 07:28 AM

Quote:

Originally Posted by Sixty Fiver (Post 13248836)
Might be time to look at a nice tandem... our shop has built quite a number of these for children with disabilities and have incorporated features so that they can really enjoy the ride.

Our convertible tandem has an adjustable rear stoker position that allows for the smallest of children to ride without pedal extensions and also allows normal sized adults to ride as stokers.

Have replaced the traditional stoker stems with safety cages or arm braces for individuals who have limited upper body strength and coordination... just built a tandem like this.

Yeah, that's likely our next step. However, it's not like she can't learn to ride a bike on her own. It's mostly a matter of motivation for her, not ability. We'll see what happens.

boneshake 09-23-11 07:30 AM

Quote:

Originally Posted by Onyxaxe (Post 13253402)
Hi. I've been diagnosed with a blanket anxiety disorder and depression. I've been dealing with it since I was 5 and it motivated me to bike instead of drive since I figured I'd be less of a threat to everyone on the road. All of my limbs function correctly 75% of the time. If I get too stressed or whatever my legs straight up give out and everything else follows including the muscles in my face, I have passed out from it a couple times. An episode can last anywhere from 2 mins to 8hrs. It's manageable in a controlled lifestyle of good eating, exercise and good family/friend relationships. I can honestly say I feel blessed since it comes and goes.

Thanks for sharing, that's an interesting thing to deal with. Glad cycling is working for you.

Neil_B 09-23-11 10:07 AM

Quote:

Originally Posted by Sgt Mac (Post 13266219)
Yo Neil I have tried to upload photos on this site a dozen times, every time I get some kind of error message. I'm the last guy that wants to go messin around with my computer converting JPEGs down to something this site will accept. I've never had an issue on any other site accepting jpeg photos. My computer skills consist of email, google searches & that pretty much covers it so if my pics are too big, well they're too big.

Post them on another site like Flickr, Photobucket, or Facebook. Copy the URL and use the photo icon to post the image.

Sgt Mac 09-23-11 11:38 AM

I will try that when I get my new bike, I just bought a Giant TCR Advanced SL1, I should have it & have it fitted to me mid next week.
Quote:

Originally Posted by Neil_B (Post 13267749)
Post them on another site like Flickr, Photobucket, or Facebook. Copy the URL and use the photo icon to post the image.


Sgt Mac 09-23-11 11:43 AM

Thanks for the tip Bro, I will look in to it!:thumb: [QUOTE=GraysonPeddie;13266284]Consider using imageshack.us to upload a photo and post a photo here.


Mine looks like this:

Neil_B 09-23-11 12:01 PM

Quote:

Originally Posted by Sgt Mac (Post 13268350)
I will try that when I get my new bike, I just bought a Giant TCR Advanced SL1, I should have it & have it fitted to me mid next week.

Not just a photo of the bike.... your photo too.

The reason I'm suggesting it is due to a memory I have from a Pennsylvania State Chess Federation scholastic event a decade ago. I was an assistant tournament director, and we had a parent object to her son being paired against a child who had 'malformed' hands. She thought we shouldn't have allowed the 'disabled' boy to play because his appearance would upset the other children. The PSCF dismissed her complaint, of course. But there are a lot of people, even in the allegedly 'diverse' cycling world that would rather we not appear in public. I'm not ashamed of what I look like. I can't see why anyone here should be.

Onyxaxe 09-23-11 01:34 PM

Quote:

Originally Posted by Sixty Fiver (Post 13266271)
I figure that being able to put on my own britches beats have someone do it for me. :)

I count my blessings every day as the injury I suffered could have resulted in much worse consequences as that organic shrapnel could have killed nerves that control other important functions and would have left me in far worse shape.

The greatest blessing has been my wife... we had just started our relationship when the accident happened and she has been with me through every step and been there to pick me up... she has fought some serious health battles in her life and is an inspiration to me.

She has beaten cancer twice and suffered from debilitating endomitriosis for almost 2 decades and was able to have that addressed surgically this winter and is now getting some post op physiotherapy... she has never been so free of pain as she is now.

She attributes much of her own good health to cycling which is something she has been doing nearly every day for many many years.

This brought tears to my eyes. I hate hearing of illnesses that make people suffer but I love hearing how people overcome them. This thread was a great idea.

Chris516 09-23-11 08:13 PM

Quote:

Originally Posted by Knittedrose (Post 13265368)
I am blind (can see light and dark only) from a progressive eye disease called Retinitis Pigmentosa. I was diagnosed as a child, attended a local "sight saving school" in grade school. Many other disabilities there as well, kids weren't main streamed, back then. I attended regular public school in Jr high and HS. I was legally blind by HS. in HS I ran cross country, track, and wrestled. I Wrestled my first year of college, but was injured and had to quit for the season. I got married the next year and didn't do any sports for a few years. Then I returned to long distance running. I ran by myself, until it was no longer safe to do so, then ran with a sighted guide. My wife and 2 children used to come and cheer me on when I ran races. I ran many 10 K's 25 K's and 3 marathons. I had to give up long distance running when my knee was injured in a car accident. ( I wasn't driving.) I continued to run 10 K's, until we moved and I no longer had a sighted person to run with. My wife of 41 years, and I, now ride a tandem, tadpole trike. We rode our first group tour this summer ,a 6 day 283 mile ride across our state. We had a great time, in spite of rain 5 out of the 6 days we rode. This past weekend we completed a 50 mile ride, The Big Mac Shoreline Ride. The weather was perfect and the ride was fun, even though we ended up with 2 flat tires. We really enjoy riding together and hope to more group tours and independent tours in the future. Life is good. :)

I don't have RP, but my vision is 20/40 in my right eye, and 20/200 in my left eye. Because of how my several brain surgeries affected my eyesight.

goagain 09-26-11 07:48 PM

My husband has left side weakness and partial paralysis due to an old stroke. Now he has a broken left hip from a fall. Is there any kind of trike or recumbent trike he might possibly ride on level pavement after he recovers from hip surgery? He cannot use his left arm at all but was able to walk slowly with a hemiwalker before his fall. This would be a very ambitious goal for him, but what is available that he might ride? Thanks so much-

I'm so glad to see this section in BF!

Knittedrose 09-26-11 07:59 PM

Quote:

Originally Posted by goagain (Post 13282694)
My husband has left side weakness and partial paralysis due to an old stroke. Now he has a broken left hip from a fall. Is there any kind of trike or recumbent trike he might possibly ride on level pavement after he recovers from hip surgery? He cannot use his left arm at all but was able to walk slowly with a hemiwalker before his fall. This would be a very ambitious goal for him, but what is available that he might ride? Thanks so much-

I'm so glad to see this section in BF!

Good for your hubby for having such an ambitious gaol. It is doable. There was a man with cerebral palsy that had only the use of one arm and one leg, he had a trike that was cutomized. I think the customizing was done by his friends. He rode in many PALM rides. (PALM stands for Pedal Across Lower Michigan.) and I think he rode across the country as well. He passed away about a year ago. This years PALM ride was dedicated to him. I never had the honor of knowing Kevin, but he was a great inspiration to many. No doubt, you r hubby will be as well.

2manybikes 09-26-11 09:37 PM

Quote:

Originally Posted by goagain (Post 13282694)
My husband has left side weakness and partial paralysis due to an old stroke. Now he has a broken left hip from a fall. Is there any kind of trike or recumbent trike he might possibly ride on level pavement after he recovers from hip surgery? He cannot use his left arm at all but was able to walk slowly with a hemiwalker before his fall. This would be a very ambitious goal for him, but what is available that he might ride? Thanks so much-

I'm so glad to see this section in BF!

Any bicycle shop can get you an adult trike (they may not want to). But they don't normally stock them. Call some shops, or put "adult trike tricycle" into your browser to see some.
There is a guy in my town that has no use of his left arm, he rides his trike every day. I have a friend that has CP and no strength in her left leg. She rides a bike almost every day. It might be difficult for your husband to get into a recumbent and out. I suggest trying to get him to sit on an adult upright trike.
Here's mine. A lot of stuff added onto it. A new one just has the one basket that holds the dog on it.

http://img600.imageshack.us/img600/8...newramp029.jpg
http://img685.imageshack.us/img685/1...newramp008.jpg

Sixty Fiver 09-26-11 09:50 PM

Quote:

Originally Posted by 2manybikes (Post 13283141)
Any bicycle shop can get you an adult trike (they may not want to). But they don't normally stock them. Call some shops, or put "adult trike tricycle" into your browser to see some.
There is a guy in my town that has no use of his left arm, he rides his trike every day. I have a friend that has CP and no strength in her left leg. She rides a bike almost every day. It might be difficult for your husband to get into a recumbent and out. I suggest trying to get him to sit on an adult upright trike.
Here's mine. A lot of stuff added onto it. A new one just has the one basket that holds the dog on it.

I picked up a trike for my housemate who has severe disability issues and cannot ride on two wheels... am not sure if I got the bike for him or my (our) dog as she loves going for rides and he loves taking her with him as they are constant companions.

On getting the trike he said it was like "freedom" and says it is the coolest set of wheels as although he does walk, the trike lets him range farther and faster and besides one fluffy little dog, it can carry a good deal of stuff.

I love Bailey's set up and also take Bijoux out for rides... there is a nightly gathering of puppies down at the park and she likes to hang with her friends.

2manybikes 09-27-11 08:15 AM

Quote:

Originally Posted by Sixty Fiver (Post 13283190)
I picked up a trike for my housemate who has severe disability issues and cannot ride on two wheels... am not sure if I got the bike for him or my (our) dog as she loves going for rides and he loves taking her with him as they are constant companions.

On getting the trike he said it was like "freedom" and says it is the coolest set of wheels as although he does walk, the trike lets him range farther and faster and besides one fluffy little dog, it can carry a good deal of stuff.

I love Bailey's set up and also take Bijoux out for rides... there is a nightly gathering of puppies down at the park and she likes to hang with her friends.

Not too many things better than getting a ride in, taking the dog along, and getting to see the dog enjoy the company of other dogs. Even better if the other dog owners are friendly. I fnd they all are friendly.
Got any photos?


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