1. I bike better than I walk
2. From first glance, I pass as 'normal'(whatever 'normal' is)
3. Due to my brain surgeries causing muscle damage, I walk sort of lethargically. This causes me to trip, so I don't walk very much to get somewhere. Which is why, I almost always ride my bike to get somewhere.
Ok, I hesitated to sign up here since my disability was heavily debated on other subforums, and many people have some very strong views.
I am legally deaf, and I mean 100% deaf in both ears when I am not wearing my cochlear implants. Have been that way since I was little. I've been riding bicycles since I was little, and logged thousands of miles up until I was 16 years old.
I ride with a group of deaf men & women when I have the chance. Bicycling was one way I could escape the wrath of hearing bullies I've encountered in my youth, and today I still ride. Most of us leave our hearing aids off while riding, and in spite of many people thinking we are insane for doing so, we all survived for the last 40+ years.
For many years I used Alcohol as a pain reliever. Imagine that! But I also suffer from the instant *** just add alcohol.
I try to ignore them. Why would I want to look like everyone else? Or ride like everyone else?
I'm sometimes told I have a big chip on my shoulder. I have to remind people that IS my shoulder!
"Do you believe," said Martin, "that hawks have always been accustomed to eat pigeons when they came in their way?"
"Doubtless," said Candide.
"Well then," replied Martin, "if hawks have always had the same nature, why should you pretend that mankind change theirs?"
I started having left knee issues at age 13, with my first (of eight) knee surgery in 1979, and my TKR 11-2009. While I limped, and at times dragged my leg, other than riding, it never really stopped me from doing most things I wanted to do. Bowling, roller-skating, ice-skating, and most sports were out by age 16.
Heart issues, OA, shoulder surgery 07-2010, right hip replaced 06-2011, genetic blood disorder that causes PEs, so, due to blood thinners for life, I can no longer take the Anti-inflammatories that I need, so am back in Pain MGNT. The list goes on - but I look normal (for a fat guy) when clothes cover all the surgical scars.
The newest 'feature' is my progressive swallowing disease that is causing weight loss (that's a plus) - hopefully we will have a solution by the time I lose all my weight (am now at 330lbs, down from the 370s, and losing roughly 8-14lbs a month).
I sold my DF and am now on a recumbent trike (tadpole) and am loving it~! Just did a 40 mile ride yesterday, had a blast, but had to sit in my chair all day today, but it's worth it~!
PS - to pick one 'disability' - it would be 'chronic pain' - and that's a tough one not only for the people around me, but for many doctors as well, as "pain" is not something that can be *seen*, and easily proven/understood. But 'pain' does change who a person is after a few or 20 years.
Last edited by Peter_C; 10-03-11 at 12:59 AM. Reason: more info
http://s1103.photobucket.com/albums/g475/Peter_CC/ <-- My Photos
I have M.H.E. I have seen reports that the "average" person with M.H.E. has 3 to 5 bone spurs. I am above average in at least one aspect of "life" - I have over 384 bone spurs. My knees and hips have been shot since childhood (one Orthopedicsurgon told me he has replaced knees and hips that were better than mine). I am 4th generation in my family to have M.H.E, and was raised to think I can do anything a normal person can (provided it is physically possible for me to move that way). By all rights I should have been in a wheelchair decades ago. I think riding my bikes has kept that chair away. Bicyclerider4life.
"Whenever I see an adult riding a bicycle, I know there is hope for mankind." (H. G. Wells)
Last edited by Chris516; 10-04-11 at 12:10 PM.
I had a pituitary tumor debulked about 11 years ago. Three years later it had come back, so they used radiation on it. Several years later as my endocrinal system slowly shut down, I tolerated problems, had some of them treated (poorly I found out) until my adrenal glands stopped and I ended up with Secondary Adrenal Insuffiency (SAI). It's like Addison's disease, the big difference is how you get it. Addisons is primary shutdown of the adrenal glands and SAI is well, secondary. Kind of like the difference between turning off the lights in your house by turning off the switch, or in my case, not paying the electrical bill.
Anyway, it causes sudden onsets of low blood pressure, among other things. I take some pills that help a lot but still I have occasional moments of passing out. They come on with a little warning, but not much. I may have a half hour hour of feeling like crap before I start to drill down and hit the floor. It's slow enough to be a soft landing, however. Plus it's very typical to make bad decisions when it happens. For example I had a spell at work last Wednesday. I got up from my desk, made my way to the canteen without telling anyone, bought breakfast, took one bite, walked away and passed out in a hallway. I got a ride to the ER for that one.
A few years a ago I was training for the TDC. I had trained up to 55 miles once, rode 30 miles for fun every weekend, rode 10 hilly miles every few nights, and often rode to work for a 20 mile round trip. On the day of the ride I was feeling great then about 5 miles out I started feeling funny and after 7 I had to stop and wait for the van. That was humiliating. Funny thing was my endocrinologist was working at the TDC booth when I got back.
Anyway it's mostly an annoyance now, and spells are, if I take all my meds, few and far between. Last one before last Weds was in March. I went over two years before that. Because of them I sold my motorcycles. Before I was untreated I was having episodes about every two weeks and felt like hell in the meantime. Right now, most of the time, I feel great.
Last edited by gitarzan; 10-04-11 at 10:27 PM.
WOW, I thought that riding with diabetes and asthma was a big deal. After reading some of the stories in this thead, I tip my to all of you who ride in spite of such great odds.
You guys are an inspiration!
My current stable:
1989 SLX Bottecchia (Campy Athena 11s)
1999 Cannondale F400 mountain bike
2012 Bianchi Infinito (Campy Record 11s)
2012 Colnago C59 in PR99 color scheme (Campy Record 11s)
Chris516 - yup, I would think you do.
I would wager that most of us, while knowing there are always people worse off then ourselves, wish at one point or another that our *issues* were different.
Not meaning to come across tacky, or the like, I tend to think someone missing most of a leg wishes (at times) that they were more like me, and vice-versa. Never having lost a limb (or it's use completely) I can only guess what someone that has goes through - but at times, I sometimes think it is worse to have *some* use of a limb. My knees almost 'taunt' me. At various points in time, they will almost work well, and then the weather will change, or God will sneeze, and boom, the pain goes crazy high, and they refuse to work - whereas if I didn't have them (my thinking goes), in time I would get used to the way my life is - because at least the issue is somewhat stable, but as they are, every day is different.
This post is *not* meant as whiny, just trying to put a 'voice' to what bounces around in my head at times. As I get older, my ability to deal with constant pain is getting worse, and frankly I can not see dealing with it for another 30-odd years.
I wonder, if someone loses say, a leg above the knee, after 20-30 years, do they become if not pain-free, do they come close to it, or *stable*, or is "phantom pain" pretty much a for sure thing that never goes away? I assume 'phantom pain' is bout as bad as most other chronic pains?
I know for sure that chronic back pain must be horrible! With the leg (example) many times you can sorta mentally cut it off and remove it from the rest of you - in other words, turning my head doesn't make my knee or hip hurt more, but with spinal issues, most any movement creates pain...
Living with my mother in-law who has been legally-blind for some 20 odd years, has created a awareness of what a lack of vision can mean, and how much people (as a group) take it for granted.
http://s1103.photobucket.com/albums/g475/Peter_CC/ <-- My Photos
I don't know if these are official disabilities.
I have a slipped disc in my back that requires constant stretching and other exercises before I go on a ride, and directly after I get done with a ride.
I have cervical osteoarthritis which when it flares up it causes nerves to pinch in my neck radiating pain to down my arms. [I'm in the middle of that right now and can't ride any of my 5 bikes].
I hate taking medications and I get extremely depressed when I'm not able to ride my bicycles.
My girlfriend swears that I have mental problems, and I'll swear that she does too.
I saw this sub forum and wanted to share. Anyway... I was in a catastrophic accident on July 12th, 2011. Amongst other injuries, the ones that affected my cycling were a broken tibia in my right leg (3 breaks, all compound) and I broke every bone from my forearm to my fingertips in my left arm, which required a partial amputation of my hand (pinky and ring finger up to the wrist so, half a hand) and a hefty amount of metal on all the breaks. I'm still going through a substantial amount of therapy and maybe have 10% use of my left hand. It hasn't stopped me and my love for 2 wheels. I've been out of a wheelchair for a month and against the advice of every friend, family member, aquaintance, etcetera hopped on 3 weeks ago just to see if I could do it. Just to make sure another passion isn't being taken away. Just to see if I could feel some degree of normalcy again. I got on and rode a block. I cried. I hurt. But I rode another block. And another. And another. I cried more but they were tears of relief. Tears of happiness. Tears of joy. All despite the pain, I was pedaling again. Feeling the wind on my face. My ears. My legs. My soul. And what's left of my hands. That happy hand that has helped me brake, shift, and control those 2 wheels for years. That's gone for the moment but it's not gonna stop me. It makes me want to ride more. It makes me want to ride harder. And it makes me realize how much it means to me and my sanity. *I've, in the past three weeks, rode about fifty miles. That used to be a normal weekday road bike ride and now it's taken 3 weeks. But I still rode them, despite the circumstances. And in all of this I've realized that I don't have a disability. I have a setback where I can't stop or ride as fast. For now. The expectations are bright for a full recovery, sans some digits. I don't know if I have the ability to inspire but I hope that everyone doesn't take those 2 wheels for granted. You never know when life will throw a curveball. I've been fortunate enough to continue to bat.*
Your turtle skirt is exposing your FUPA.
crackerjab... there are no words here.
Except as always... you f'ing rock.
unfortuantely hearing loss, deafness is a silent disability so to speak. so many don't understand it, nor do they take the time to want to converse or carry out a conversation.. i use to be pretty much extroverted as it has worsen to the point it is now i have become more intorverted. life is good though and i try not to let others ignorance bother me. I look @ everyday as a blessing and just keep going forward
Last edited by HAMMER MAN; 10-09-11 at 06:37 PM.
"Advantages Must Be Pressed, Disadvantages Must Be Overcome"
American Expat living in the Netherlands
Artist, Educator and Cyclist