My name is Frank and at 55 was never with a serious medical problem until 8 months ago today, when I received (in the ER) a foley catheter to relieve severe urinary retention that was causing me to go into renal failure. I've been with the foley since then because I'm no longer able to urinary on my own but am eager to return to cycling...
Hi, I'm Kae, and I'm really here to get some advice for my sister, who has a number of mobility (and other) issues. The truth is, she doesn't really need a bike at all... but something that will allow her to move around using only her right leg. But more about that in a minute. Glad you all are here; hope you can help.
I am crazylady. yes, if anyone asks. I am the one that knows stormcrowe in his own home. (joking there)
I was wondering if anyone can help me out here. I just found out my eyesight is now considered legally blind. Would any of you put anything on your bikes for that? I would not because I have a recumbent, but I have been wondering that. I know what it is like to have items happen, but I have the right on the road as everyone else. I am sure a great deal of you feel the same way. Let's talk.
I do believe the answer to that is just wear some items a bit looser and then go from there. You will be into the cycling because you can see it here in your words.
Hi I'm Taro. I'm not disabled but I'm recovering from a bad crash that broke my clavicle. I'm really inspired by the stories here and my problems seem so minor by comparison. I'm just starting to gain use of my right arm again though my fingers are still a little numb and I have a strange irritation on my leg but my shoulder is less painful than it used to be since I crashed 3 weeks ago. I'm not sure whether I'll ride ever again because I don't want to put myself through this again. I've been considering getting a "safer" bike -- maybe a cross bike with wider tires would keep me more stable when the road isn't nice to me. I really enjoyed going fast and love going uphill and downhill, and was just starting to like spinning like mad since I don''t have the leg strength to push big gears. And then I crashed on a lonely flat stretch of road and I wasn't trying to go very fast. Every day since my accident has been like a rainy day. The weather is so nice and warm but it hurts to move around very much. And of course I can't ride for a while. I've been spending my days mostly sleeping, eating and a little walking. I've enjoyed cycling so much and it's been a big part of my life. But I'm afraid of cycling again and put myself in danger again :(
I belong to a bike coalition and a bike club. My accident was caused by running over something in the road that I couldn't see (someone said it was a small pothole) that immediately made me lose control of my bike. It really caught me by surprise and when I was falling I did try to correct myself, but my front wheel was moving freely so I must have already been airborne. I don't know if my bike coalition has something to say to prevent accidents, though I'll check, what else can I do right now...I was wearing a helmet, which was barely scratched, and there was minimal damage to my bike. I got most of the damage. BTW I like your picture. It would be nice if "poof!" things could go back in time and I didn't crash that day.
I'd blink away problems if I could! :)
I have a road bike and a hybrid bike. The hybrid (Specialized Sirrus) has nice, fat tires, flat bars for a more upright position, and easy gearing. It's my "fun" bike that I use for commuting and running errands. It's a bit more stable than the road bike, and I can't go nearly as fast.
If you don't want to give up cycling, maybe something like this would work for you.
I've been thinking about a cross bike. I never did before this accident. Or maybe get 25c tires instead of 23c that I've been riding. Cross bikes look attractive because they look just like road bikes but can accommodate wider tires. If I do ride again, I would like to still ride with my club and ride centuries. I'm not considering a cross bike for riding in mud. It'll take some time for me to decide on what to do. I'm still trying to decide what to do with my current bike. Fix it up a little and sell it? Or maybe put on my old wheels on it and sell my nicer wheels (Shimano Dura-Ace c24s) separately. I never thought about parting with my bike. I thought I'd have a life-long relationship with it. Whenever I'm in a hotel I take a picture of it.
So I will take some time to think this over....
Hi, it's me again. I know this thread is just to "introduce myself". Is there another thread or forum on the topic of "how to cope with and recovering from bicycle injuries"? I feel pretty isolated since my accident. The people I've talked to so far who have gone through a similar accident seem to shrug it off. But every day I'm in enormous pain. On top of that, it's difficult getting around, it's boring, and every time I see a cyclist I want to go say 'hi' but can't because I'm on foot. Tomorrow is 'Bike to Work Day' in my area. I might walk to an Energizer Station and try talking to some people on my way back from my visit to the doctor's.
Introduction: I am a longtime left below knee amputee who is around 50 years old. I am slow, but I love cycling. My amputation is not from diabetes. Sometimes I bike commute to work.
Hi. I'm Erin. My hubby, Tyson, has CP. In his case it manifests with poor balance and shorten calf muscles which, over the years, has led to ankle deformity and the beginnings of arthritis in his knees and ankles. He rides a modified Norco Parklane with rebuilt gearing.
Hello, I am Kevan and I am a paraplegic due to MS complications. I also have severe vision loss because of the MS as well. I am getting into adaptive cycling and have made my first 20 mile ride the otherday with my son (he is my saftey rider) I am curently training for the Tour de Tucson in November. I can do the 60 mile race but not the 85 or 110. Bowth have dry river crossings forcing you to get off your bike and walk, can't do that.My goal is to compete in an Ironman in 2014. I just wanted to let everyone know I was here and I may be asking alot of questions. Keep riding!
Just wanted to introduce myself... My name is Keith and I'm a Right-Leg Above the Knee Amputee (RAKA). Lost my leg over 30 years ago, when I was 15, to osteo sarcoma (bone cancer). I've been looking to increase my cardio so I bought a handcycle (Freedom Ryder LC-1) about 3 months ago and I've been riding it consistently about 3-4 times/week. It's a lean-steer (you turn with your body, like skiing) and it's been a great workout (arms, chest, stomach, sides, lower back). I'm happy with my handcycle, but I am always curious to see what adaptations may exist with a "regular" bike.
My apprehensions (as a RAKA) with a regular bike:
1) How do I pedal on my right side? I don't have the muscle to bring up the right pedal from its lowest position to its apex unless I power through with my left leg and have the momentum carry me through. That becomes tiring pretty fast for my left leg (esp. the quads)
2) I can't always guarantee that I will lean left when coming to a full stop. If I accidentally lean right, I would have to hope that my prosthetic knee locks; otherwise, I'm on the ground.
I'll be scouring the threads for options, but I'm willing to listen to everyone's opinions.
On that note, hello everyone!!!
My name's Tom. A shout out to Mr. Stormcrowe for the forum and to all the folks here for sharing. I'm grateful to have found this place. I'm 47. Somehow that number just can't be mine, yet here I am occupying space and time. Me and a motorcycle had a bad day back in '86. I was 21. I'm sorry to say that the bike didn't survive the crash. Neither did the pickup truck that we folded. Fortunately there weren't any other casualties. The details of the long road to 47 are messy. My left leg makes a pretty good kickstand. I've got about 25-30 degrees flexion in that knee and an AFO to prevent footdrop. Most of the quadricep and ham went the way of the knife and the remaining tissue, laterally anyway, had already turned to bone before i'd left the hospital which was 2 months post-incident. I practice mindful meditation to keep my pain from drifting into the lives of those close to me. I don't miss motorcycles as much as I've missed mountain biking, backpacking, and all those other little excursions into the wild I might have made. I came across an adaptive item while surfing the Internet the other night that appears as though it might get me back on a bicycle. I intend to solicit some feedback in another post regarding this. I haven't really searched yet to see if this item has already been a topic of discussion here. All the same, I'll be grateful to hear any thoughts and opinions that you all might have, even it's off-topic.
Hi everyone! It's been a while since I visited this forum and I was happy to notice this adaptive cycling group. I manufacture and sell the Buddy Bike, an alternative inline tandem bicycle that puts the smaller rider in the front seat. We mostly sell to families with kids with cognitive disabilities, sight impairment or minor physical disabilities. It holds up to 380 pounds so 2 adults can ride as well as long as the rear rider can safely see over the head of the front rider. Anyway, just to let you know of a couple other adaptive cycling resources, I put together an Adaptive Cycling Roundtable last year at Recumbent Cycle-Con (RC-C) in California. The event was a successful brainstorming session. There will be another RC-C in October 2013 and I hope to hold another roundtable. As a result of the last roundtable, we formed a group in LinkedIn called "Adaptive Cycling Exchange." Feel free to join that group as well if you can help promote adaptive cycling and bicycles for everyone! We purchased the domain name www.adaptivecyclingexchange.org and hope to build an online resource to educate and inform. Our goals are: 1) to let adaptive cyclists know what equipment is available and where to buy 2) to educate bike shops in how to fulfill the needs of adaptive cyclists and 3) to educate doctors about the benefits of cycling for their special needs patients so they can help families obtain cycling equipment. Someday I'll get that site online but would love to have help from anyone interested in developing central resource for all things adaptive cycling. firstname.lastname@example.org
My name's Bob. It's very cool to see this forum area. I still remember the first time I saw discussions of Adaptive Cycling start on the forums.
2 years ago I would not have had a story to tell, and along the way I don't really know if I would have known where to start. But 2 years after my accident, my story seems to be coming together. It was posted on June 19th over at http://mylifeinrecline.com/ac-blog/2...ot-beaten.html
With Tom's blessing, I'm linking the actual blog, http://mylifeinrecline.com/ac-blog because I think it might be of special interest to this group. The site is dedicated to all kinds of recumbent riding, but there is a special focus area on Adaptive Cycling. The article tend to be "Long Form" reads.
Whether you have 1 story to share or hundreds, drop us a line if you think others could benefit from what you have to say or what you have learned alone the way.
If you want a real challenge we are forming a Ragbrai 2013 team, that will likely be the subject of a documentary if we can get the filming rights.
That's all, great to meet everyone
I'm Jen. I have been some sort of cyclist all of my life- until about 6 years ago. I had a bad fall off of my horse, and the result was a broken back (L5/S1) compounded by what the doctor called an "exploded" disc that went undiagnosed for months. Basically, I fell, blew out a disc into little tiny pieces, and cracked 2 vertebrae. The result was an eventual spinal fusion. Because the injury that everyone thought was "just a pulled muscle" went so long, I've been left with some nerve damage.
The doctors repaired my spine, and I can stand straight. The resulting nerve damage left me unable to feel most of my left leg. I was told I'd never walk without a limp. I was told I'd never ride a bike, much less my horse again.
PHOOEY, I said. I've been on the horse since 6 weeks post surgery. I only limp when tired. I missed my bikes! A month or so ago, I made the husband go get my bikes from the attic. Only my most junky MTB was still in running order, so I took it out in the yard and proceeded to fall off of it. Twice. I finally figured it out, and then went 2 miles to the local convenience store. Once I got there, I couldn't really stand up. I sat around drinking a Gatorade,a and then rode the 2 miles home. I fell off (AGAIN!) when I got there, but I couldn't be happier!
The nerve damage has left something of a balance issue. I look, walk, and talk like an able-bodied person. I love to ride, and I love touring and distance rides. I'm hoping to be able to figure out how to re-balance myself. With no feeling in my left leg, things like clipless pedals are rather impossible at times. I'm looking forward to figuring out how to ride long distances and stop without falling over at the end.
Cheers, and safe rides!
Hello everyone, I am Bill, been a BF member for a few years, mainly in the great 50+ forum. My handicaps are multiple but I manage to ride daily, just not very far as many are able to do. I fell at work in 1989, compressing my spine at L5-S1 causing me to gradually loose function on the right leg. The WC insurance people pretty much threw me to the wolves, claiming I was a slacker and was trying to get something for nothing from them. Never asked for anything so I eventually tired of them and told them to go away and leave me alone. I handled all expenses personally. I worked basically 7 days a week, 10-12 hours a day as an on-site Quality/Civil Engineer for a general contractor, the entire time.
Finally had 3 surgeries and the last a 2 level PLIF at L4-L5 and L5-S1 gave me back the use (mostly) of my right leg, in 2002, 2003 and 2004, 2 were laminectomies that failed shortly after the procedures. During this time, 28 May 2000 to be exact, I had an appendix rupture I couldn't feel until I was septic, due to the pain killers I was taking (more on this later) and 5 days after the surgery I had gangrene set in resulting in an eviscerated small intestine. One helicopter flight later I had emergency surgery to clean out the abdomen and resection the SI. I was left open to heal for 6 months. Upon discharge the surgeon told me I would have scar tissue growth problems for the remainder of my life. he was right, during the PLIF surgery the scar tissue strangled the SI and I filled up with digestive and gastric fluids. NG tubes to drain me, sent me home after 4 days and It strangled again. Another resection and tissue removal were done. This surgeon told me I would have very bad problems with scar tissue, she was right, too.
I have had a total of 16 surgeries, 3 on the spine and 13 on the abdomen/small intestine. Contracted MRSA that recurs regularly and takes a course of IV infusions for 4 weeks, daily, to bat down. I have a surgical wound that will never close I have to clean and dress many times a day. My limitations are a weakened right leg from muscle atrophy, reduced ROM in the spine (I cannot rotate or bend very far forward,) severe chronic pain in the abdomen and low back and general balance problems. the pain killers did a real number on me and I sought out help last November with a certified pain management specialist physician. He got things in order for me quickly. Better pain medication, no buzz or loopy feeling, and a good muscle relaxer for the persistent spasms in my abdomen and legs. The Soma I took caused severe mood swings, mental confusion and fatigue. Never again will I use them.
I can ride my bike fairly safely, the balance problems have abated as I ride more each day and worked on my balance and got the proper medications for my pain condition. I ride a 2012 Cannondale CAAD 10 4 and love every minute of the riding. The pain is somewhat abated, from a steady 9 on the Wong-Baker scale to a bearable 6-7 level. After 23 years this is a goo day for me. I do my stretches and exercises and due to Chronic Renal Failure, Stage 3B I watch my diet very closely, respecting my dietary restrictions, completely. I have entered my first metric century on 20 October 2012, and look forward to completing it.
I avoided this forum because I was in denial about my disabilities and felt that people with "real disabilities" needed this place as their own. I have made peace with my self that I am disabled, not helpless and that I can contribute to the world around me and do things, just realizing I need to do them differently from others. Thanks much to Tom Stromcrowe, the mods and admins for Bike Forums,net and all the efforts to keep the forum running smoothly. 50+ people are very supportive of my situation and encouraging to me. All my best to everyone here, ride lots!
Hi to you all out there. A rather late introduction but nevertheless. This might well serve some purpose transcribed into the other thread for those with disabilities or impairments/disadvantages.
I joined this forum in 2010 after I had not long before received Total Left Knee replacement. I am 4ft 10 inches tall with a 23" inside leg measurement.
That created a massive problem when it came to the full circulatory action of the crank arm on the @Metal Knee side,the maximum bend that I can achieve is 92*. Taller riders would not experience this.
I got over the problem with some 140mm crank arms courtesy of SJS (Thorn) Cycles and used Stronglight rings on their crank-arm 5arm spider.
The shorter crank configuration has created an equivalent of a 2tooth increase in ring size and also has created a very slight difference in cadence because of being slightly nearer the spindle centre.
The alternatives were a few but the shorter crank arms were by far the neatest and less likely for potential failure & wear and tear on the components.
I was so pleased with the end result that I have equipped all three of my bikes the same and all with Marcel Berthet Lyotard Platform Peddles. I can go from one bike to another with the same Vittoria Leather Cycling Shoes and Aluminium Plates with ease.
Jeff, looks like you are a ways away from me in sunny Southern California. I have a friend who is a premier bike frame builder. His name is Russ Denny. He has done several bikes for those with various handicaps. If you can think it, he can build it. Here is his information.
Russ Denny Bicycles
- (951) 652-6268
1211 W Acacia Ave, Ste 16, Hemet, CA 92543
Jack Denny was the most noted frame builder with Hyman (Harry) Hetchins in London,England and was attributed for cutting some of the 'Hallmark' Lug-work and I believe was also responsible for the Vibrant Triangle (Curly Rear Stays) that was so clearly an instant identifier with Hetchins Frames.
My name is Aimee and I live in NW Arkansas (it's snowing here at the moment..!!!) I have a neurological condition called CIDP which is in remission but which has left me with the inability to ride a regular bike... I keep wanting the saddle to be lower so that my feet will touch the ground...Also, I cannot stand for very long so it is necessary that I be able to ride a bike to and from where I am going or else I will find myself trying to sit down wherever my legs give out...
I know I am not explaining this very well... Suffice it to say that I am looking for a forward crank bike that can have the front tire removed easily to mount it on our car rack... I need for it to light enough for me to lift it up to to the rack on my own but substantial enough to feel steady under me... I am looking at the RANS Alterra 700 but the price of such a bike is the draw back now... I don't mind a used bike but Craig's list is not showing anything available like it in my area... Any other suggestions..??? Do people ever resell these bikes..???
How light do you need? The RANS you mentioned is 26 lbs which is rather light for that general style(mtn. bike, cruiser, etc.). Basically, you can't get light(and sturdy) for cheap. All front wheels are easy to remove, it's just the bolt-ons require you have a wrench handy.