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10-22-08, 04:01 PM
Hello -
Bike4Beka : DYSTONIA Cycling 2008 Event
Towards a CURE.
Dear Friends and Cyclists :
Before Dystonia struck, I was a capable cyclist. I loved to ride along the Erie Canal in upstate New York and covered up to a hundred miles each week. Picking enough Black-eyed Susans to fill our household collection of Ikea Vases!
Today, I can no longer ride a bicycle, or even run. A few weeks ago I even lost the ability to walk while at work (mind you it was in the ICU setting), despite successful Deep Brain Stimulation surgery years ago. The effects of not being able to walk, frightened the wits out of me and left me lying in bed for a week. Never a day goes by, when I do not worry about experiencing falls and the reoccurrence of symptoms that prevent my walking or my hope that I will ride ONCE again.
The charitable donations contributed, will be distributed to a variety of projects and researchers. Post-Graduate & Doctoral RNs, PhD.s, Neurologists and Pain specialists etc. who are focused on gene therapy, new treatment options, rodent models that display new multiple and varied forms of dystonia, new drug development and on mental health , coping skills, medication use, overall healthcare outcomes as they relate to dystonia.
Please join in this exciting effort with me! ( But how I miss Cycling...siggh..)
~~~~ Beka Serdans, RN, MS, NP EMail - infoc4d@aol.com
LOG on to : http://nonprofit.Kintera.org/Bike4Beka2008
Dystonia, a movement disorder is similar to Parkinsons’ disease.
VISIT http://www.care4dystonia.org to learn more about dystonia.
Bike4Beka : DYSTONIA Cycling 2008 Event
Towards a CURE.
Dear Friends and Cyclists :
Before Dystonia struck, I was a capable cyclist. I loved to ride along the Erie Canal in upstate New York and covered up to a hundred miles each week. Picking enough Black-eyed Susans to fill our household collection of Ikea Vases!
Today, I can no longer ride a bicycle, or even run. A few weeks ago I even lost the ability to walk while at work (mind you it was in the ICU setting), despite successful Deep Brain Stimulation surgery years ago. The effects of not being able to walk, frightened the wits out of me and left me lying in bed for a week. Never a day goes by, when I do not worry about experiencing falls and the reoccurrence of symptoms that prevent my walking or my hope that I will ride ONCE again.
The charitable donations contributed, will be distributed to a variety of projects and researchers. Post-Graduate & Doctoral RNs, PhD.s, Neurologists and Pain specialists etc. who are focused on gene therapy, new treatment options, rodent models that display new multiple and varied forms of dystonia, new drug development and on mental health , coping skills, medication use, overall healthcare outcomes as they relate to dystonia.
Please join in this exciting effort with me! ( But how I miss Cycling...siggh..)
~~~~ Beka Serdans, RN, MS, NP EMail - infoc4d@aol.com
LOG on to : http://nonprofit.Kintera.org/Bike4Beka2008
Dystonia, a movement disorder is similar to Parkinsons’ disease.
VISIT http://www.care4dystonia.org to learn more about dystonia.