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  1. #26
    Senior Member jpatkinson's Avatar
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    Glad to read you have a diagnosis to explain your symptoms. HCM is genetic, and not everyone has the same severity of disease. My understanding (I am a primary care doc) is that for patients with this disease, we tend to advise 1) avoidance of volume depletion (don't get dehydrated!), 2) restriction from intense physical activities such as most competitive sports (this is worth discussing with your cardiologist after your second echo), 3) controlling heart failure symptoms and chest pain (though you aren't at this point) and 4) screening of first-degree relatives (get your kids checked!). I think I would inquire about getting a stress echo (echo while exercising). The huge risk here is sudden cardiac death -- your cardiologist should be able to tell you how much is "too much," so you can continue to enjoy cycling! - JP

  2. #27
    Senior Member PatrickGSR94's Avatar
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    Yeah they did talk to me about staying hydrated. Also he did say cycling is good but "don't do those 100-mile races or anything". Well, I'm not a racer by any means, but I feel like I could probably do a century ride as long as I wasn't pushing myself hard the whole time. Might take me 8 hours to complete but I think I could do it.
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  3. #28
    Senior Member jfowler85's Avatar
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    Are we talking cardiomegaly or ventricular hypertrophy or something else?

  4. #29
    Senior Member PatrickGSR94's Avatar
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    From what I understand "cardiomegaly" is the general condition of an enlarged heart, which could be caused by different things. In my case it's HOCM or hypertrophic obstructive cardiomyopathy.
    2011 Felt Z85 105 | Ultegra | KMC | Selle Italia | Vuelta | Topeak
    90's-ish KHS Alite 1000 MTB, *hybridized*

  5. #30
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    Quote Originally Posted by jpatkinson View Post
    The huge risk here is sudden cardiac death -- your cardiologist should be able to tell you how much is "too much," so you can continue to enjoy cycling! - JP
    Well PatrickGSR94 if the above is true, you might become a member of a really select group of riders.... the ICD guys. I have a single lead model that is like having a little heart doc on board 24/7 (well ok maybe more like that pimply faced kid with the EMT uniform and the paddles). BUT STILL...Much better than SCD. Whatever the outcome I sure you will be able to continue riding and enjoying life. Good luck.

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