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Old 01-15-10, 10:09 PM   #1
DnvrFox
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Proud Dad, Andy Bicycling Again

As many of you know, my son, Andy (born in 1967), has a profound Developmental Disability, along with other concerns.

In early March of 2009, he fell and could not walk afterwards. Despite our best efforts, we could not get a diagnosis for him. Even though he was walking prior to his fall, most of the MD's assumed he had Cerebral Palsy and could not (seeing him in a wheelchair, they just assumed that was where he had been all of his life) actually believe that he had walked. He got some very strange diagnosis in our journey to find why he was not walking - including that his muscles were wasting away.

We spent months searching for a diagnosis, and finally, a Physiatrist decided that his problem was not his knee (which was one of the diagnoses that many MD's thought), but likely something else, and ordered a full lower body bone scan, and discovered that for 6 months, he had a broken femur.

We found a wonderful specialty surgeon (the regular orthopods refused to operate) and the repair was in September. After 9 days of hospitalization, he was discharged to his Host Home. For 8 weeks he could put no weight on his leg, which was a real challenge for all of us, including Andy.

Today, Andy got back on his bike, and here is a picture of him on his first bike ride in almost a year. He had a ball and rode for a mile.

And, I don't know where the pink snow came from!!



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Old 01-15-10, 10:16 PM   #2
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This is happy news and a great picture! Congratulations to Andy!
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Old 01-15-10, 11:02 PM   #3
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Great news, Dnver.
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Old 01-16-10, 01:21 AM   #4
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Takes a lot of will power to go through what you and Andy have- so well done to the pair of you. And Mrs DnvrFox

I was going to say "Chapeau" but it looks like Andy has that already. Just tell him to do a short recovery ride Today- The Metric can come next week.
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Old 01-16-10, 05:49 AM   #5
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Super cool news. I bet you had/have to be on cloud nine.
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Old 01-16-10, 06:25 AM   #6
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Well now. Isn't that the happiest bit of news that i've heard all week. Congratulations!
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Old 01-16-10, 06:57 AM   #7
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Now this is very good news. I may use your family's story in class when we discuss persistence in dealing with challenges. Makes me proud to know you via this forum.
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Old 01-16-10, 08:34 AM   #8
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Now this is very good news. I may use your family's story in class when we discuss persistence in dealing with challenges. Makes me proud to know you via this forum.
It's a public forum! Use what you like.

Thanks
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Old 01-16-10, 08:41 AM   #9
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Congratulations to you, your wife and especially Andy. He looks very happy riding that bike. It must have been very frusterating to finally get a proper diagnosis.
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Old 01-16-10, 08:44 AM   #10
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Outstanding news, Denver! Good on you and Nora for your consistent efforts.
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Old 01-16-10, 09:00 AM   #11
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Go Andy!

It's a shame you had to wade through so many layers of preconception to finally get to an accurate diagnosis.
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Old 01-16-10, 09:27 AM   #12
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That's great to hear. Um, what about some gloves?
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Old 01-16-10, 09:32 AM   #13
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That's great to hear. Um, what about some gloves?

Andy does not wear gloves, and it wasn't that cold.
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Old 01-16-10, 10:13 AM   #14
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That is a great pic. Go Andy!
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Old 01-16-10, 10:42 AM   #15
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Cool! Glad you finally got a proper diagnosis and that Andy's fit to ride again.
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Old 01-16-10, 11:48 AM   #16
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Andy does not wear gloves, and it wasn't that cold.
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Old 01-16-10, 08:09 PM   #17
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Riding will get his muscles back in no time. Just don't forget to have him take a walk into some of those dense MD's offices. Maybe they will listen to what families more in the future. Such good news for all of you.
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Old 01-16-10, 08:44 PM   #18
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Congratulations to you, your wife and especially Andy.

Sad that it took so long to do the proper exam. I have twice broken bones for which a doctor and nurses did not believe me because I was very young. One nurse that did not believe me, was putting pressure on my arm as part of the exam. When she cracked the bone a little more and heard the loud crack sound, she stopped arguing that it was not broken.
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Old 01-16-10, 09:17 PM   #19
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SMILES!, not miles, YEAH!!! GO ANDY!!!
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Old 01-17-10, 05:45 PM   #20
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When reading this story some monts ago it made me profoundly sad. I am so lad things are turning out just fine - you made my day!
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Old 01-17-10, 06:43 PM   #21
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Terrific news, thanks for the update. Andy is lucky to have you and Nora looking out for him.
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Old 01-17-10, 06:59 PM   #22
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Thank you for sharing that -- reminds me that MY little issues can be overcome. I've just had a sprained/cracked ankle that took 4 weeks to ferret out.

You GO, Andy!
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Old 01-17-10, 07:18 PM   #23
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When reading this story some monts ago it made me profoundly sad. I am so lad things are turning out just fine - you made my day!
We filed a muilti-page official complaint with the Colorado Board of Medical Examiners today regarding his (lack of) treatment for many months/improper diagnosis, causing 6 months of pain, loss of the ability to walk, contractures, much, much expense, etc., and the general lack of the medical community actually listening to us (his interpreters, if you will), making the improper assumption that he had severe cerebral palsy, and that was why he couldn't walk, etc., etc.

I'll be curious what they do with it, as the complaint is against a "system" and the attitude and assumptions of that system about individuals with developmental disabilities, and not one particular MD, except the one - his former PCP - who called at 3:30 pm the day before we were finally going to get the bone fixed, screaming at the surgeon that he should not operate at that other hospital because, "it is not safe" and repeating that to us when we called her, and refusing to fax his history and physical, causing a one weeks further delay (and pain) in his treatment, and our need to find a new PCP, and get a new H&P and then totally reschedule all of the things we had in place to support him and us during his 9 day hospital stay (excellent treatment, by the way - best hospital we have ever been in, and in no way "unsafe.").

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Old 01-17-10, 10:27 PM   #24
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That is pretty disgusting treatment. Glad you finally found a doctor and hospital that know what the hell they are doing.
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Old 02-27-11, 05:42 PM   #25
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UPDATE 02/27/2011

1. We filed a complaint with the Colorado Board of Medical Examiners - under the Department of Regulatory Agencies. Months of investigation, hours spent by us in writing it all up, phone calls, etc. The net result - you guessed it - NOTHING. The Board said none of the MD's violated the Colorado Medical Practice Act. So . . . .

2. But the good news is that we had lunch yesterday with Andy, and he is using his walker excellently. To the point of lifting it off the ground to sort of get it out of his way. And Andy, who is pretty non-verbal, told us rather clearly, "I can walk." That made our day/week/month/year!!
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