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  1. #1
    Legs; OK! Lungs; not! bobthib's Avatar
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    OT: news about my 6y/o grandson Bad >> Good :-)

    The little tike in my avatar is my now 6 y/o grandson Tyler. In march he was diagnosed with stage 4 Neuroblastoma, a childhood cancer. He was recently found to be cancer free.

    Friday morning he had a seizure. The made a preliminary diagnosis of ADEM, a rare brain disorder resulting from a viral infection or immunization. It is generally curable.

    Today they revised the diagnosis to PML, a terminal viral brain infection. There is no treatment. They give him 6 - 12 mos. But they also said there is a small chance that this diagnosis is wrong. They did a spinal tap to confirm. We'll know in a few days.

    I'm in total shock. He is my best buddy. I used to ride him in the bike seat on the hybrid, pick him up at school, and ride to the park. In August I got the tandem and rigged up a foot rest so he could ride on that.

    If you pray, please pray for another mis diagnosis and a complete healing.

    You can read his story at http://www.caringbridge.org/visit/tylerharrison
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    Last edited by Little Darwin; 01-29-10 at 08:27 PM.
    BT
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    "Oh, to be 60 again!"

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  2. #2
    Senior Member George's Avatar
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    Man that is absolutely terrible news. I had to sisters that died of cancer, so I can relate to what your going through. I sure hope they are wrong. My prays go out to him and his family.
    George

  3. #3
    Senior Member miss kenton's Avatar
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    I am so sorry to hear this. I will definitely keep Tyler and your family in my prayers.

  4. #4
    just keep riding BluesDawg's Avatar
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    Very bad news indeed. I am hoping it does turn out to be a misdiagnosis. I will keep positive thoughts coming his way.
    The more you ride your bike, the less your ass will hurt.

  5. #5
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    Bad news like this is especially sad when a child is involved. Never give up hope.

  6. #6
    Team Poseur Metric Man's Avatar
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    It sucks to see kids sick...thoughts and prayers for him and your family.
    The thoughts and opinions expressed by this poster are his own and should not be misconstrued as gospel. They are and were not meant to inflame, enrage or otherwise tick anyone off, usually.
    2012 Ti Motobecane with SRAM Red 2013~2008 Trek Madone with SRAM Force~2010 Specialized Hardrock 29er~2006 Trek 4300~Garmin 800 CTR
    Mark

  7. #7
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    I'm praying for him.

  8. #8
    Senior Member kr32's Avatar
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    I hate coming here hearing bad news about any member or their family. This is so sad, I am praying for him and you and family. I am also praying for a misdiagnosis, seems there were a few already so..

    Hang tough.

  9. #9
    Member Trundlecreak's Avatar
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    My best wishes, thoughts and prayers.

  10. #10
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    Having lost two children of our own, and almost a third, I can relate to some of the fears and emotions you're experiencing. There is no decription for the gut wrenching reality of the doctors reports that suck the spirit from the depths of your heart. The emotional roller coaster of good news and setbacks is mind numbing. To see our beloved children suffering these horrific deseases can transform even the strongest of us into a sobbing, emotionally drained empty shell.

    I read Tyler's story on the link you provided, well as much as I could bear to as my own memories started to overwhelm me.

    Our thoughts and prayers will be with you every day. May Tyler live a long and healthy life filled with the love and family he's grown so accustomed to over the past six years. May your family find the strength to deal with what ever the future holds in store. May our Gods and our doctors finally free our precious children from these terrible diseases.

    You are not alone my friend, we're all praying for Tyler.

    God Bless.

  11. #11
    Senior Member tntyz's Avatar
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    My thoughts and prayers are with you.

  12. #12
    Email for new group DnvrFox's Avatar
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    My prayers are with Tyler, his family and you.

    Sometimes life just plain sucks.
    Almost gone from the 50+ forum. - Email me at dnvrfox@aol.com for another fun new group of 50+ folks

  13. #13
    Senior Member jdon's Avatar
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    Sorry to hear. Let's hope for that misdiagnosis. Best wishes for a positive outcome.

  14. #14
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    I am praying for him and his family.

    Paul

  15. #15
    Senior Member Allegheny Jet's Avatar
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    My thoughts and prayers are for you, your grandson and family.
    oldschool areodynamic brick

  16. #16
    Senior Member ?? Beverly's Avatar
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    I'm so sorry to hear this terrible news. Tyler and your family will be in my prayers.

    Please keep us posted.
    =============================================================
    My cancer updates:
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    Enjoy the little things in life, for one day you may look back and realize they were the big things.
    -- Antonio Smith

  17. #17
    Legs; OK! Lungs; not! bobthib's Avatar
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    Quote Originally Posted by cranky old dude View Post
    Having lost two children of our own, and almost a third, I can relate to some of the fears and emotions you're experiencing. There is no decription for the gut wrenching reality of the doctors reports that suck the spirit from the depths of your heart. The emotional roller coaster of good news and setbacks is mind numbing. To see our beloved children suffering these horrific deseases can transform even the strongest of us into a sobbing, emotionally drained empty shell.

    I read Tyler's story on the link you provided, well as much as I could bear to as my own memories started to overwhelm me.

    Our thoughts and prayers will be with you every day. May Tyler live a long and healthy life filled with the love and family he's grown so accustomed to over the past six years. May your family find the strength to deal with what ever the future holds in store. May our Gods and our doctors finally free our precious children from these terrible diseases.

    You are not alone my friend, we're all praying for Tyler.

    God Bless.
    Eloquent words written from the heart with the pen of experience. I am humbled and moved.

    I certainly appreciate all of the kind words from my "BF family."
    BT
    BT
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    "Oh, to be 60 again!"

    http://tickers.TickerFactory.com/ezt...c/exercise.png

  18. #18
    Pedaled too far. Artkansas's Avatar
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    My older brother died at age 8 from a rare form of cancer, after my older sister had died of Meningitis at age 4. I don't think the family has yet recovered. So my heart and thoughts go out with you, your children and your grandchildren.
    Last edited by Artkansas; 01-20-10 at 08:23 AM.
    "He who serves all, best serves himself" Jack London

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  19. #19
    Senior Member
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    Lost my dear younger sister at age 50 and other members of the family. Can't imagine how I would feel if anything happened to my own grandson who is very special to me, also. Best hopes for a better diagnosis.
    Fuji S10S, Trek 1.1

    "The bicycle, in the hands of a novice, is as alert and acute as a spirit-level in the detecting of delicate and vanishing shades of difference in these matters. It notices a rise where your untrained eye would not observe that one existed; it notices any decline which water will run down." -Mark Twain, "Taming the Bicycle"

  20. #20
    Senior Member NOS88's Avatar
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    Quote Originally Posted by bobthib View Post
    If you pray, please pray for another mis diagnosis and a complete healing.
    You got it. Will hold you all in the Light.
    A conclusion is the place where you got tired of thinking. - S. Wright

  21. #21
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    I will remember the lil guy in my daily prayers.

  22. #22
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    Different disease, different treatment, and I know nothing anybody can say will make your next few months any easier. For what it's worth, though, my son was diagnosed with a potentially terminal cancer in June of 1983, when he was 2. He turned 29 in September and is doing fine--got a college degree, working at a job he enjoys, enjoying life in a city 1000 miles from home. We pray your story will end as happily

  23. #23
    Galveston County Texas 10 Wheels's Avatar
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    Get Well T
    [SIZE=1][B]What I like about Texas[/B]
    http://www.youtube.com/watch?v=PGukLuXzH1E

    Set F1re To The Ra1n ( NY Night Rain Ride)
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  24. #24
    Senior Member wrafl's Avatar
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    I'm sorry to hear about that Bob. My thought and prayers for him. Hoping here that the diagnosis is reversed.

  25. #25
    Senior Member rumrunn6's Avatar
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    good grief what an emotional roller coaster! have you considered a new team of doctors?
    cycling is like baseball ~ it doesn't take much to make it interesting

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