Doctor confirmed the Parkinson's today.
08-27-14, 09:30 PM
#51
Senior Member
abrianb,
10Wheels and Vic, No plans for a trike right now, they may well come but I don't need one, yet and there are no current restrictions on my riding. The doctors are fine with my riding and encourage me to continue. Great to know that 10wheels is returning after that bad time from the accident, This makes my day.
Bill
10Wheels and Vic, No plans for a trike right now, they may well come but I don't need one, yet and there are no current restrictions on my riding. The doctors are fine with my riding and encourage me to continue. Great to know that 10wheels is returning after that bad time from the accident, This makes my day.
Bill
I need it to add to my collection of Caad 8's and 9's.Just kidding ... I figure that you'll be riding it a few more miles yet.
Thank you again for the connection with Hansel.
Paul
08-28-14, 05:36 AM
#52
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Paul,
The CAAD10 is kind of like some of the firearms' peoples' feelings, they will take it away from me
when they pry it from my cold, dead fingers
Glad that we could try to help out, your son will at least have a friendly contact in Montreal, in Hansel, he is a really first rate young man.
Bill
The CAAD10 is kind of like some of the firearms' peoples' feelings, they will take it away from me
when they pry it from my cold, dead fingersGlad that we could try to help out, your son will at least have a friendly contact in Montreal, in Hansel, he is a really first rate young man.
Bill
__________________
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
08-28-14, 07:22 AM
#53
Senior Member
I'm sorry to read that. My father was diagnosed with PD when he was 75, but I suspect he had it long before the diagnosis. He lived another eleven years, and had some good years.
All PD doesn't progress at the same rate, so you might have a long period with mild symptoms.
I once saw a video of a Dutch PD patient who couldn't walk but could still ride a two wheeled bike with no problem.
All PD doesn't progress at the same rate, so you might have a long period with mild symptoms.
I once saw a video of a Dutch PD patient who couldn't walk but could still ride a two wheeled bike with no problem.
08-28-14, 08:11 AM
#54
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When we are young, our healers talk about "curing" our disorders. When we are older, the objective is to "manage" our malfunctions. We, of course, are the ones that actually get to manage our problems day by day. The doctors only rarely see the snapshots (when we visit) and have read the literature. We, the ones on the receiving end, can only gamely go on and hope that each new day is better than the last. A diagnosis is only a prediction. It's not a review where the plot twist at the end is already known. Uh, what was the question again?
08-28-14, 10:51 AM
#55
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08-28-14, 10:58 AM
#56
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Sorry to hear, Bill. Please stay strong.
__________________
When I ride my bike I feel free and happy and strong. I'm liberated from the usual nonsense of day to day life. Solid, dependable, silent, my bike is my horse, my fighter jet, my island, my friend. Together we will conquer that hill and thereafter the world.
When I ride my bike I feel free and happy and strong. I'm liberated from the usual nonsense of day to day life. Solid, dependable, silent, my bike is my horse, my fighter jet, my island, my friend. Together we will conquer that hill and thereafter the world.
08-31-14, 10:42 AM
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God bless you, Bill. tom
08-31-14, 11:30 AM
#58
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I had a friend with this pernicious disease until recently - he was relentless in pushing his physical, and social activity and his various projects to the max. It seems to me you have some of the same characteristics. For a while he was better on the (2-wheel) bike than he was walking. I wish you well.
08-31-14, 03:44 PM
#60
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I hate to hear the news, but it sounds like you have a great attitude about it. Good for you!
I work in P'cola, so shoot me a message if you want and I'll buy you lunch......I'm always looking for new riding buddies.
I work in P'cola, so shoot me a message if you want and I'll buy you lunch......I'm always looking for new riding buddies.
09-01-14, 06:21 AM
#61
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Where do you work at? I'd enjoy meeting you and just chatting, if not riding some. You have to enjoy riding pretty slow to ride with me, though
I'm up in the Molino/Barrineau Park area, right off of the Alabama line, at the Perdido River, and I ride in that area daily. I rode in the Lillian area and around South Baldwin County, for several years back in the late 70's and early 80's, with the Pensacola Freewheelers Club. My schedule is pretty flexible and any day is good for a ride, to me.
Bill
I'm up in the Molino/Barrineau Park area, right off of the Alabama line, at the Perdido River, and I ride in that area daily. I rode in the Lillian area and around South Baldwin County, for several years back in the late 70's and early 80's, with the Pensacola Freewheelers Club. My schedule is pretty flexible and any day is good for a ride, to me.Bill
__________________
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
09-01-14, 06:32 AM
#62
Senior Member
I'm up for that!!!!!
Okane,
Thanks, I've already had my spinal surgeries, thank you very much. Three of the critters, the last and most successful was a 2 level P.L.I.F., at L4-L5 and L5-S1, got the bone grafts with Ti cages, Ti plates on each side and 4 Ti screws. Gave me back my right leg after 15 years of paralysis from a fall at work. Not related to the PD, though. I suspect that none of the 13 abdominal surgeries I've had, nor any of the IV antibiotic infusion series were responsible in any way for the PD.
I pretty much choose to just laugh about the strange happenings with my body, now, and take it all in stride. Fussing, ranting or crying will not change things one bit and I need my strength for the bicycle rides I have planned right now. Glad that you can manage well and still ride, maybe some day we can meet up and pedal a while together, say a 50+ PD from BF Century, Metric or Half Century. that would be pretty cool.
Bill
Thanks, I've already had my spinal surgeries, thank you very much. Three of the critters, the last and most successful was a 2 level P.L.I.F., at L4-L5 and L5-S1, got the bone grafts with Ti cages, Ti plates on each side and 4 Ti screws. Gave me back my right leg after 15 years of paralysis from a fall at work. Not related to the PD, though. I suspect that none of the 13 abdominal surgeries I've had, nor any of the IV antibiotic infusion series were responsible in any way for the PD.
I pretty much choose to just laugh about the strange happenings with my body, now, and take it all in stride. Fussing, ranting or crying will not change things one bit and I need my strength for the bicycle rides I have planned right now. Glad that you can manage well and still ride, maybe some day we can meet up and pedal a while together, say a 50+ PD from BF Century, Metric or Half Century. that would be pretty cool.
Bill
09-02-14, 10:17 AM
#64
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My boss has dealt with Parkinson's for a number of years and is currently in an NIH trial program. He is in his late 60's and going pretty strong all things considered. All the best to you in managing your illness, there is a large national support base and it looks as though you have one here as well
09-02-14, 07:31 PM
#65
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Popeye, the 50+ forum is probably one of the most supporting groups I have participated in. There is a lot of push on in many of the foundations for PD to encourage people to become involved in a field trial of some type. As elusive as the cause of PD is, finding a cure or preventive is as hard, if not harder, since pin pointing the cause of the dopamine producing cells dying off hasn't been found. I'm seeing the neurologist next Monday morning to establish the treatment and management plan so anything beyond that is not on my scope yet. Not ruling it out though.
I'll definitely be looking into local support groups for Monica and I to use. I am already studying the information at the Davis Phinney Foundation's website and I preordered the next printing of their guide book as well as the exercise and management DVD set.
I like to say thanks to okane for the P.M.'s the last few days.
Bill
I'll definitely be looking into local support groups for Monica and I to use. I am already studying the information at the Davis Phinney Foundation's website and I preordered the next printing of their guide book as well as the exercise and management DVD set.
I like to say thanks to okane for the P.M.'s the last few days.
Bill
__________________
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
09-04-14, 06:32 PM
#66
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Where do you work at? I'd enjoy meeting you and just chatting, if not riding some. You have to enjoy riding pretty slow to ride with me, though I'm up in the Molino/Barrineau Park area, right off of the Alabama line, at the Perdido River, and I ride in that area daily. I rode in the Lillian area and around South Baldwin County, for several years back in the late 70's and early 80's, with the Pensacola Freewheelers Club. My schedule is pretty flexible and any day is good for a ride, to me.
Bill
I'm up in the Molino/Barrineau Park area, right off of the Alabama line, at the Perdido River, and I ride in that area daily. I rode in the Lillian area and around South Baldwin County, for several years back in the late 70's and early 80's, with the Pensacola Freewheelers Club. My schedule is pretty flexible and any day is good for a ride, to me.Bill
Just a boring gub'ment job in downtown P'cola. I know your area well though. I'll message you some contact info. I don't live there but commute in every day. We can get together for lunch sometime and talk about how fast we were when we were young........
09-08-14, 08:00 PM
#67
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I saw the neurologist that will take over my long term care, this morning, a very nice, personable chap. He did the expected tests on me, watched me walk, examined both arms for their tone and rigidity, had me draw a spiral and write my signature out and pushed me from the front, back and sides to judge how which direction I would fall, as well as a lengthy talk on how the symptoms effect me in my daily life.. Agreed with the overall diagnosis and is scheduling an MRI of the brain, what he thinks might be in there I cannot imagine
, its all a vast
, empty
, unused space to the best of my knowledge up there (they rule out anything organic such a tumor and a few other possibilities, it seems.) The meds will begin in October, that is a trial and error process, which I think will be a real blast to do.
And, life goes on and on, and on, hopefully.
Bill, the twitchy one
. He did the expected tests on me, watched me walk, examined both arms for their tone and rigidity, had me draw a spiral and write my signature out and pushed me from the front, back and sides to judge how which direction I would fall, as well as a lengthy talk on how the symptoms effect me in my daily life.. Agreed with the overall diagnosis and is scheduling an MRI of the brain, what he thinks might be in there I cannot imagine, its all a vast, empty, unused space to the best of my knowledge up there (they rule out anything organic such a tumor and a few other possibilities, it seems.) The meds will begin in October, that is a trial and error process, which I think will be a real blast to do. And, life goes on and on, and on
, hopefully.Bill, the twitchy one
__________________
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
Last edited by qcpmsame; 09-09-14 at 07:54 AM.
09-09-14, 12:54 PM
#69
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09-09-14, 02:43 PM
#70
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Well Bill I hope all goes well with your Dr. and continious progress in everything that you do. I believe that you are in charge of health.
Regards,
Gary
Regards,
Gary
09-09-14, 02:47 PM
#71
Senior Member
I haven't been here long but already know what kind of man you are and if Michael J. Fox can handle this debilitating disease?...
it should be just another day in the park for a Marine!
it should be just another day in the park for a Marine!
09-09-14, 03:13 PM
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With every birth a journey begins. Some roads traveled during that journey are smooth, some have bumps and potholes. Hoping that modern medical advances help smooth out the new road you will be traveling.
09-09-14, 05:57 PM
#73
aka Phil Jungels
Sorry to hear this , Bill.
You now get to join with all the rest o us cripples, quacks, and oldsters.
Every day is the best day of the rest of your life, and celebrate everyone.
Best of luck, and we'll add you two to our prayer list...............
You now get to join with all the rest o us cripples, quacks, and oldsters.
Every day is the best day of the rest of your life, and celebrate everyone.
Best of luck, and we'll add you two to our prayer list...............
09-10-14, 05:20 AM
#74
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Phil,
Thanks for the prayers, they are always welcomed and appreciated. As to joining the gang, I was a long time member before the PD came into the picture.
We all have to play the hand we are dealt, mine just happens to have a number of Jokers in the deal (as I don't gamble or even play cards I hope that made sense, or was at least close to being coherent.)
Getting in to see the neurologist was a big part of managing the PD, I'm happy it happened so quickly, kudos to my primary care physician and his staff. The trial and error for starting the medication(s) will be my next step in the successful management of things. There are times I wonder what the heck is going on and if there is a light at the end of the tunnel, or an oncoming train with its light on
Main thing for all of us is to keep moving forward, and cycling lets me do this, its just more enjoyable when riding a bicycle.
Bill
Thanks for the prayers, they are always welcomed and appreciated
. As to joining the gang, I was a long time member before the PD came into the picture.We all have to play the hand we are dealt, mine just happens to have a number of Jokers in the deal
(as I don't gamble or even play cards I hope that made sense, or was at least close to being coherent.)Getting in to see the neurologist was a big part of managing the PD, I'm happy it happened so quickly, kudos to my primary care physician and his staff
. The trial and error for starting the medication(s) will be my next step in the successful management of things. There are times I wonder what the heck is going on and if there is a light at the end of the tunnel, or an oncoming train with its light on Main thing for all of us is to keep moving forward, and cycling lets me do this, its just more enjoyable when riding a bicycle.
Bill
__________________
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
Semper Fi, USMC, 1975-1977
I Can Do All Things Through Him, Who Gives Me Strength. Philippians 4:13
Last edited by qcpmsame; 09-10-14 at 06:12 AM.
09-13-14, 07:15 AM
#75
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Hi Bill!
Despite the dismal diagnosis you have been given, it appears you already have your trust in the Great Physician through whom you can do all things!
I would also like to recommend an interesting book for you to get your hands on...Grain Brain by a renowned neurologist Dr. David Perlmutter. He has been able to slow the progression, reverse the effects, and even cure his patients of numerous "brain" related diseases...Alzheimers, dementia, MS, and Parkinson's to name a few. His book explains in PLAIN language exactly how the brain works and what it needs to thrive and remain young and healthy. All of the recommendations tat he makes are easy logical diet changes. At the age of 57, I started following the instructions in his book and have been at it for the last 2 years. The results are that feel completely young again in many ways...more energy, more stamina, clearer brain skills, better cholesterol numbers-without medication, and dropped several sizes in the process also. I truly hope that you will pick up a copy and see is it makes sense and put some of it to successful use!
Got you in my prayers! Psalm 20 ends with "we rise up and stand firm..." GOD BLESS
Katz P
Despite the dismal diagnosis you have been given, it appears you already have your trust in the Great Physician through whom you can do all things!
I would also like to recommend an interesting book for you to get your hands on...Grain Brain by a renowned neurologist Dr. David Perlmutter. He has been able to slow the progression, reverse the effects, and even cure his patients of numerous "brain" related diseases...Alzheimers, dementia, MS, and Parkinson's to name a few. His book explains in PLAIN language exactly how the brain works and what it needs to thrive and remain young and healthy. All of the recommendations tat he makes are easy logical diet changes. At the age of 57, I started following the instructions in his book and have been at it for the last 2 years. The results are that feel completely young again in many ways...more energy, more stamina, clearer brain skills, better cholesterol numbers-without medication, and dropped several sizes in the process also. I truly hope that you will pick up a copy and see is it makes sense and put some of it to successful use!
Got you in my prayers! Psalm 20 ends with "we rise up and stand firm..." GOD BLESS
Katz P
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