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Old 05-11-07, 03:11 PM   #1
blonduathlongrl
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how was your week? ( had a really tough one)

I wont go into details but I had a really tough week.

As some of you know I have a daughter with life threatening allergies and this week was tough.
Pollen is getting bad, she suffered 3 asthma attacks just this week, missed school because of a sinus infection and bronchitus, the kid is just not all that great.
Two things made me very sad this week, she misses a lot of school because of her condition and sleeps a lot and she asked me " am I missing out on my life?"
made me sad...

Then the school had a field trip planned where it excluded her because of the high exposure to peanuts but more so because it would of been too risky on her life to even breathe in there, the air born allergie to the peanuts would of for sure get to her. Doctor said NO, they excluded her and didnt even try to make accommodations for her to be able to go like all her friends.

I had to fight all week, I had the 504 laws ( laws for children with desabilities) and the office of civil rights help me. Noone can be left behind and excluded souly based on thier desabilities.

They are now forced to make accommodations for her to be able to enjoy a field trip like everyone else.

It was just a tough week and tough for me to explain to her why some people are so inconsiderate and she said something that made me sad. She said " at least if I was in a wheelchair, they could SEE that I cant always do everything the other kids do"

Anyway, I needed to get this out, thanks for listening to me, Im just a bit sad and frustrated by how much I have to fight with people for my child.

Hope everyone's week was better than mine!
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Old 05-11-07, 03:25 PM   #2
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((HUGS))

Yeah, sometimes life can be a real pain in the rump.

I heop your daughter's feeling better. Allergies are one of those things that people don't really think is a disability unless they have one themselves.
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Old 05-11-07, 03:27 PM   #3
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sorry yours was bad, mine was good.

spent last night at southwest frameworks watching cudas serrotta get buffed out and then helped install headset and cut down steerer on fork.

gonna chill with my wife and boys for the weekend and try to get in a ride.

ordered some new look pedals and hopefully will be getting some new road shoes tomorrow.

hope things get better for you bdg.

will say a prayer for your family tonight.
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Phobias are for irrational fears. Fear of junk ripping badgers is perfectly rational. Those things are nasty.
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Old 05-11-07, 03:28 PM   #4
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Awww I'm sorry it was a tough week for you, BDG! That must be so frustrating for you both!

My week has gone rather well. Doing pretty good here in Utah land.
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Old 05-11-07, 03:30 PM   #5
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Sorry yours was so shiatty, BDG. Mine, too. ((hugs)) I can commiserate, FWIW.
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Old 05-11-07, 03:36 PM   #6
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maybe this would be the right time for a foo drink?
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Old 05-11-07, 03:38 PM   #7
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I had 4 cigarettes due to stress at work after not smoking for over a year. SIGH! Oh well back on the no smoke wagon!
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Old 05-11-07, 03:45 PM   #8
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My week was okay...I had my last day at my one job, but my family is going to be in town this weekend, and that stresses me out.

I'm so sorry to hear that your daughter is having so much trouble, I hope that she feels better. She is LUCKY to have a mom who will fight for her to be a normal kid.
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Old 05-11-07, 03:46 PM   #9
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Mine wasn't too bad FTW.
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Old 05-11-07, 03:58 PM   #10
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My week was okay...I had my last day at my one job, but my family is going to be in town this weekend, and that stresses me out.

I'm so sorry to hear that your daughter is having so much trouble, I hope that she feels better. She is LUCKY to have a mom who will fight for her to be a normal kid.
thanks..
yeah.. everyone seems to think Im so strong and wont let anyone push her over, today I heard "wow, you're a strong cookie"
thruth is I kinda needed to tell someone that althought I won and they will have to make it accessible for her, Im really not that strong. There was plenty of phone calls made where I had to pause because tears were coming down my face.
For instance when I asked the administration to help lower the risks of exposures, i was told"just dont have her go" and the anger and sadness that came over me was something else.

I just couldnt tell anyone around me that I feel drained, I sure dont want my daughter to see that Im a bit weaker then she thinks I am. I figured this was the right place to ask for a hug!

Anyway,thanks for the listening ear everyone..
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Old 05-11-07, 03:58 PM   #11
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Quote:
Originally Posted by blonduathlongrl
maybe this would be the right time for a foo drink?
cheers, have a pina colada, and a mai tai, and another mai tai.
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Phobias are for irrational fears. Fear of junk ripping badgers is perfectly rational. Those things are nasty.
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Old 05-11-07, 03:58 PM   #12
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I am sorry for your daughters condition BDG. No child deserves that. It is great you are willing to fight for her as so many will not. Get that drink and make it a double. My week started crappy and ended great. Biopsy says I don't have cancer and we are picking up our new puppy tomorrow.
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Old 05-11-07, 04:05 PM   #13
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Originally Posted by cgallagh
I am sorry for your daughters condition BDG. No child deserves that. It is great you are willing to fight for her as so many will not. Get that drink and make it a double. My week started crappy and ended great. Biopsy says I don't have cancer and we are picking up our new puppy tomorrow.

extremely happy for you!
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Old 05-11-07, 04:08 PM   #14
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Originally Posted by blonduathlongrl
...As some of you know I have a daughter with life threatening allergies...
Don't know if this is an option but my son's alergies almost disappeared when we moved to the high and dry climate of Colorado. Calgary perhaps?
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Old 05-11-07, 04:14 PM   #15
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BDG like most of us you have the strength of a thousand lions when it comes to your loved ones. It may have been a tiring fight and it hurts you to see her like this - feeling left out and not understood - but for her to see that you can make a difference..........she is watching you every step of the way. She is getting stronger because of you. She is learning because of you. And you know what? When you are not able to be there for her and she is older, she will be a person who will never back down when it comes HER turn to fight.

cgallagh, I am very happy to hear your good news, I've been down that path before. Time to celebrate life and release all of that stress you must have been holding. I know that during that time, I found out a whole lot of things that I saw I thought were different.

My week has been pretty darn peachy. Work is great, friends are wonderful to me and my bike is coming a month early!
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Old 05-11-07, 04:28 PM   #16
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+1 to what everyone else said, BDG- and +100 to Siu re: your example to your daughter. My wife had to fight constantly for our older one (now 19) for soimething completely different, but she had to fight nonetheless. For sure, I must say that this has to be one of the important reasons why our older one is so strong and model citizen with the most incredible empathy for others. So while I'm sure you feel exhausted, frustrated, and sad, know that you are indeed having a positive influence- you might not see it now, but I bet down the line it will be quite evident.

Feel better- tomorrow's another day, and another week starts in a couple of days- it will all be good. And have a margarita on me
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Old 05-11-07, 05:01 PM   #17
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*hugs* for BDG

I had a long, long week. I had finals on Monday and Tuesday. Since then I've been working and riding. Last night I was able to let loose and have a social gathering with most of my fraternity brothers. It was a good end to a long week.
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Old 05-11-07, 05:21 PM   #18
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If any other allergies are asthmatic, I can tell you a dry climate is AMAZING (if you ever had that option).

My heartfelt sympathies go out to you. You're the type of mother few people are lucky enough to have. Many would break under your stress or not attempt it, though I'm sure you know that. I'm quite familiar with your situation as my last gf went through hell on an almost daily basis for her children. It's draining and it's hell. But you do it and you know you can and will succeed, because when you see the example you're setting for your daughter and how much this does for both of you, somehow you know there's a bottomless well of love down there that you know you can always draw on.

It's bad dealing with those allergies, but dealing with inertia, bureaucracy, and apathy sometimes feels like it's one straw too many.

You'll pull through. You have the spirit. And you have the love of your daughter to give you inspiration and comfort.

Try to take it easy this weekend. At the very least order your man to bring you pancakes in bed on Sunday.

**HUGS**
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Old 05-11-07, 05:26 PM   #19
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Don't feel you have to play the pillar of steel in front of your daughter. In a way, showing your vulnerability and sharing your sadness offers her a way to help you by loving you back. It's a two way street, and she gains as much from being able to be there for you as you do from being there for her.

Embracing your weakness gives you strength.
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Old 05-11-07, 05:32 PM   #20
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If it's any consolation my last 2 weeks have been pretty crappy (though not as bad as yours).
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Old 05-11-07, 05:43 PM   #21
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If it's any consolation my last 2 weeks have been pretty crappy (though not as bad as yours).

thanks and thanks and thanks for all those kind words.. it's so good to have a place like this, I dont feel so alone in this now..
and big hug to you too for your two crappy weeks..
Id say we HAVE to organise some sort of online cook outs for all of us!
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Old 05-11-07, 05:59 PM   #22
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Quote:
Originally Posted by blonduathlongrl
thruth is I kinda needed to tell someone that althought I won and they will have to make it accessible for her, Im really not that strong. There was plenty of phone calls made where I had to pause because tears were coming down my face.
For instance when I asked the administration to help lower the risks of exposures, i was told"just dont have her go" and the anger and sadness that came over me was something else.

I just couldnt tell anyone around me that I feel drained, I sure dont want my daughter to see that Im a bit weaker then she thinks I am. I figured this was the right place to ask for a hug!

Anyway,thanks for the listening ear everyone..
I've found that tears are very rarely a sign of weakness A sign of fierce passion, you bet. Your daughter's lucky to have you in her corner. It's totally to be expected that you'd feel drained after that week - I hope you get to relax some.
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Old 05-11-07, 06:19 PM   #23
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You coming out my way again, X?
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Old 05-11-07, 06:39 PM   #24
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Oh okay. Let me know when you do.
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Please dont outsmart the censor. That is a very expensive censor and every time one of you guys outsmart it it makes someone at the home office feel bad. We dont wanna do that. So dont cleverly disguise bad words.
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Old 05-11-07, 06:54 PM   #25
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This week sucked.

Monday: Torrential rain, I broke out my MTB to commute on, and I got soaked, completely and totally soaked. People around the office came back from the weekend with colds, and here I am shivering, slightly wet under my work clothes, defenseless.

Tuesday: Started to feel like crap, tickle in the back of my throat. Broke out the road bike! Woot! Tuesday night, running a fever of about 100.

Wednesday: Called in sick, slept all day, coughed, sneezed, ugh. Drank tons of water.

Thursday: Went to work again, the commute made my throat feel even more raw, but I felt better than Wednesday.


Friday: Pain and suffering. No fever, but I couldn't concentrate at all today. I took it easy on my bike today so that I didn't breathe at all through my mouth, and I probably downed 2 cups of tea, 3 cups of coffee and 8x refills of my 24oz bike bottle while at work today.

I'm feeling a little better now, but I have some after-hours telecommuting to do at 0:01 Sunday AM. So much for being bright-eyed and bushy-tailed at church, where I have to set up and run sound, lights, and video with limited helpers that haven't been properly trained, except for my mom. Not sure I'm going to make her run video on Mother's Day though, that would be lame.
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