I had a neurology appointment today. After the usual poking and prodding (I have lost ten pounds because of the drugs) I got to talk to my doctor and hear a phrase you never want to hear in medicine, Ē uh-oh.Ē We were talking about the fact I was having seizures daily lately, and after trying 4 medicines, several at the high safest dose. That I am showing no real improvements at all, and in some areas I am actually getting worse.
He noted, that having tried this many drugs for over a year now with basically no results. That itís more likely than not I will continue to have seizures unless there is brain surgery. There are two problems with that. The first problem is the one I have with that. the fact no one actually knows whats wrongs with me, so I would rather them not melon balling my brain. It is the only one I have, plus I have put a lot of time into it. The second problem is the fact I donít have insurance. Doctors donít work for free typically, so even if they knew where to dig, I couldnít pay them. So for now, they are trying a left field drug and anti-depressant.
After leaving the clinic I was heading to the coffee shop because I needed to see my friends. I kinda needed some reassurance at that point. Being alone probably wasnít a good idea. Taking my usual route I woke up in the ditch with people standing over me which meant Iíd had another seizure on my bike. One of these days I am going to break my laptop when I do that.