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  1. #1
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    Cycling with a bicuspid aortic heart murmur - anyone else out there?

    I have been diagnosed with a bicuspid aortic heart murmur. I'm having a transesophageal echocardiogram this week. The cardiologist wants me to hold off on riding until we get through with the test. So needless to say I'm a little worried. Anyone out there have the same or similar condition and if so, what have your doctors recommended and are you still riding?
    Thanks for taking the time to read thi post. Have a great evening!! :--)

  2. #2
    Every day a winding road spinnaker's Avatar
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    So you want to take the opinion of some anonymous forum member that may or may not have the exact same condition as yours, over that of your doctors?


    Listen to your doctor and wait for the tests. If he/she clears you after the test then go out and ride.

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    Just wait for the tests and do what your doc tells ya. You could end up like me; the murmur could be completely functional and non-handicapping.
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    Boffin TitaniuMerlin's Avatar
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    I was born with a Heart Murmur almost exactly 21 years ago. Heart problems run in my family (dad have 4-way bypass surgery a year ago at age 51 despite being physically fit) so the mother made me get my heart checked out. Looked good but murmur still there though its not a malignant thing. So i'm fine as far as i can tell, but not sure how serious yours might be.
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    Do what the Doc tells you--period. That's why he makes the big bux. I don't have a problem like yours, but I've had a double spinal fusion. I did exactly what my Doc told me to do, and I've been grateful ever since.
    CityRocksWoods: I ride, therefore, I am.

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    I have a bicuspid aortic valve which causes a murmur. My cardiologist didn't recommend any change in activity.

  7. #7
    Long Distance Cyclist Machka's Avatar
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    I have two damaged valves - two murmurs. One is the mitral valve, and I believe the other one is the aortic valve.

    Mine was caused by rheumatic fever when I was very little, and I have to be very careful about avoiding becoming in contact with things like the strep throat bacteria.

    I go for heart tests every few years to monitor the situation ... and it is probably a good thing I do because they discovered the second murmur during my most recent battery of tests. That was something of a surprise to me! I was also told by my heart specialist that he'd like to monitor me for congestive heart failure. There isn't a really high chance of it, but ....

    As for exercise, I told my heart specialist what type of cycling I do, and he OK'd it.

  8. #8
    Prefers Cicero cooker's Avatar
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    Quote Originally Posted by spinnaker
    So you want to take the opinion of some anonymous forum member that may or may not have the exact same condition as yours, over that of your doctors?


    Listen to your doctor and wait for the tests. If he/she clears you after the test then go out and ride.
    Be gentle. People don't post this kind of query because they really believe bikeforums is the best source of medical expertise. They post it because it's going to take a while to get the answers from specialists and tests and they hope to at least get a little peer support or encouragement in the meanwhile.
    RGC

  9. #9
    Every day a winding road spinnaker's Avatar
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    Sorry if it sounded a little harsh but I would bet this is the exact answer that my doctor would give to me. He is no nonsense and I admire it.

    And some people do want to look for reasons to ignore the truth, just ask Lance.

    Yes it is probably nothing but the only person that can tell you that is your doctor. Other people's conditions have nothing to do with yours on something this serious.

  10. #10
    Senior Member John Wilke's Avatar
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    I'd take the doc's recommendation and hold off. While you can get a replacement valve or a new heart, it is kind of a big deal.

    jw

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    Thanks for everyone's response.
    I always listen to the doctor that's why I went to a cardiologist in the first place. Just wanted to see if anyone out there has been through what I'm going through and see what their results are. My anxiety is very high right now regarding this upcoming test. I took no offense to anyone's replies. I appreciate all the responses. I might have a messed up heart but I have thick skin. ;--) Looking forward to enjoying this b-board and hopefully cycling until I'm 120.
    Have a great evening!!

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    A bicuspid aortic valve is pretty common.If you don't have any symptoms now-shortness of breath etc-you will probably just have to take antibiotics before dental work,and have your valve checked periodically.Most folks never develope problems as a result of it,and never develope any exercise limitations.If it goes sour in the distant future,you will have plenty of warning-it will be detected during the checkup-any degradation will be very slow-it won't go from good to bad in a week-it would take years.Luck,Charlie
    PS-If you already have symptoms,then the timeframe will be shorter,but it would still be gradual.

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    I've got a heart murmer and mitral valve prolapse. It hasn't caused me any problems yet in my 46 years. Listen to your doctor, of course, but don't worry too much.

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    Well I had the transesophageal echocardiogram this past Tuesday. Real fun. NOT!! I have been waiting to hear from my cardiologist. He's suppose to call on Monday. So they let me leave the hospital and he hasn't called right away. So I'm hoping that's a good sign.
    As for having any signs that something may be wrong, I've never had any. I'm 41 and have always been athletic all my life. I ride 3,000 to 5,000 miles a year on average, play and coach soccer and usually don't sit still for too long. So I guess this came as a bit of a shock that the murmur was more than just your average murmur.
    Anyway, thanks for the posts. I will posts my results once I talk to the doctor.
    Have a great weekend!!

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    Sprockette wabbit's Avatar
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    I also have a murmur- i think they called it Systolic emission. I didn't know i had it until i was in my teens so obviously i didn't notice anything. As far as i know i was born with it. It's very slight, the doctor said it sounds like a slight echo in the heart chamber. So instead of going Boom-boom, it goes boom Foom. Anyways, I asked about cycling and all that and it's fine. However, i think that it would be a different story if i were planning on elite competition.

    I know that some murmurs are benign, and some kids have murmurs that go away. In some cases it can be an indication of something more serious. ONe thing i know is that having a heart murmur can keep you out of the army! If i had any symptoms or anything i'd for sure get it checked out.
    You can catch more flies with honey than with vinegar. That's great...if you want to attract vermin.

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    Senior Member John Wilke's Avatar
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    Quote Originally Posted by bike-boy
    Well I had the transesophageal echocardiogram this past Tuesday. Real fun. NOT!! I have been waiting to hear from my cardiologist. He's suppose to call on Monday. So they let me leave the hospital and he hasn't called right away. So I'm hoping that's a good sign.
    As for having any signs that something may be wrong, I've never had any. I'm 41 and have always been athletic all my life. I ride 3,000 to 5,000 miles a year on average, play and coach soccer and usually don't sit still for too long. So I guess this came as a bit of a shock that the murmur was more than just your average murmur.
    Anyway, thanks for the posts. I will posts my results once I talk to the doctor.
    Have a great weekend!!
    Just a gut feeling, but if you're riding your bike (at all), I don't think they are going to want to split your sternum and replace/fix that valve. If it get's so bad that you're sleeping in the full up right position, then it's time for surgery. I would expect more echo's (TEE's) in the future though, just to keep an eye on things. They aren't fun, I had to be FULLY sedated by an anaethesiologist when they tried shoving that hose down MY throat for a TEE.



    jw

  17. #17
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    Good morning/afternoon all. Well I got my results and they were better than first perceived. The doctor said I'm all clear to get back on the bike. He did say no heavy lifting. I told him I do weights but more reps less weight. He said that's fine. So if I don't have any issues I am to see him in a year. So this Monday is a good one for me.
    Thanks again for all your posts and comments.
    See you on the road and the boards.
    Have a great day!! :--)

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