How does Arthritis affect your riding?
03-13-09, 06:46 PM
#26
Peloton Shelter Dog
Everybody gets arthritis. It's when, not if. And if you play sports at all (and many here do) and ever got an injury or had surgery (ditto), you'll have arthritis somewhere soon. My right knee feels like somebody pumped it up to 150psi, it gets stiff, swollen, a bit sore. Makes it hard to hammer on the bike. Reacts to weather (it's barometric, stormy weather or fronts moving in sets it off). Happily my arthritic knee responds well to Glucosamine supplements (they have to have MSM and Chondroitin too). Those Synvisc shots were like a Miracle Cure, but they're pricey and somewhat painful (but you only need three over two weeks, then you're good for 8-12 months).
My knee had gotten to the point where I had made the appointment for another round of Synvisc. I had those shots in early February of 2008. By this past September my knee starts getting cranky again. My doctor prescribes Meloxicam, an anti-inflammatory I hadn't used before. Miracle Drug 2, my knee gets stiff, I take that pill for one or two days, I'm good for a week. I was averaging only one Meloxicam a week through December 08. Then I start taking them every day, but the knee is pretty stiff, so I schedule the shots. Then I figure let me try a pricier version of the Glucosamine supplement I use. I start reading the labels at the store, and I notice that the one I'm taking does NOT have this crap called 'MSM'. So I start taking one that does have the MSM. Within 4-5 days my knee feels fine. This was over a month ago, and so far, so good. I talk to other people who take these supplements, and several other people confirm that the MSM (in conjunction with Glucosamine) is critical. I don't think it's a Placebo Effect, particulalrly since I expected it NOT to work, and because it has been working for a month now, and I've been riding and training pretty hard.
So far so good.
My knee had gotten to the point where I had made the appointment for another round of Synvisc. I had those shots in early February of 2008. By this past September my knee starts getting cranky again. My doctor prescribes Meloxicam, an anti-inflammatory I hadn't used before. Miracle Drug 2, my knee gets stiff, I take that pill for one or two days, I'm good for a week. I was averaging only one Meloxicam a week through December 08. Then I start taking them every day, but the knee is pretty stiff, so I schedule the shots. Then I figure let me try a pricier version of the Glucosamine supplement I use. I start reading the labels at the store, and I notice that the one I'm taking does NOT have this crap called 'MSM'. So I start taking one that does have the MSM. Within 4-5 days my knee feels fine. This was over a month ago, and so far, so good. I talk to other people who take these supplements, and several other people confirm that the MSM (in conjunction with Glucosamine) is critical. I don't think it's a Placebo Effect, particulalrly since I expected it NOT to work, and because it has been working for a month now, and I've been riding and training pretty hard.
So far so good.
03-13-09, 06:50 PM
#27
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When I get out of bed in the morning, my joints sound like a bowl of Rice Krispies. Snap, Crackle, Pop...
03-13-09, 06:51 PM
#28
Peloton Shelter Dog
03-13-09, 06:54 PM
#29
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I was thinking carbon fiber, but I think titanium is the gold standard for joint replacements.
03-13-09, 07:30 PM
#30
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My arthritis is in the big toe joint of my right foot. I had it checked and it is so far gone that the Dr recommended surgery to fuse the bones. I have not had the time to make a decision about that.
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03-13-09, 07:56 PM
#31
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I have plenty of arthritic joints but I'm young and the degeneration is early-stage.
There is no plan of attack or game plan or any such nonsense. With arthritis, it is what it is.
My knees make me limit my climbing. I could probably force myself to do more but, with early degeneration, the always-looming question is "at what cost?".
I also have to refrain from mountain biking, something I would like to do, but I'm in my 30's now and even without my arthritis, I might be a mostly-road bike weenie anyway. That seems to happen to many of my healthy contemporaries even though they could be pounding and grounding their joints as much as they want to.
I don't take medication because I just don't aggravate it. At least not much. My left knee is consistently aching right now but not enough to make me pop some pills. I resist because I want to limit how much of that garbage my body has to process.
After all is said and done, I'm just glad I can still ride.
There is no plan of attack or game plan or any such nonsense. With arthritis, it is what it is.
My knees make me limit my climbing. I could probably force myself to do more but, with early degeneration, the always-looming question is "at what cost?".
I also have to refrain from mountain biking, something I would like to do, but I'm in my 30's now and even without my arthritis, I might be a mostly-road bike weenie anyway. That seems to happen to many of my healthy contemporaries even though they could be pounding and grounding their joints as much as they want to.
I don't take medication because I just don't aggravate it. At least not much. My left knee is consistently aching right now but not enough to make me pop some pills. I resist because I want to limit how much of that garbage my body has to process.
After all is said and done, I'm just glad I can still ride.
03-14-09, 07:17 AM
#32
Tiocfáidh ár Lá
I think the difference is that RA is more of a constant thing, where as PA can flare with varying levels of severity from time to time depending on personal triggers. That's my understanding, although I'm not as much in tune with RA details. I've had all rib joints, spine, hip, knees, balls of feet, several toes and fingers flare at once with PA. Completely debilitating making it difficult to breath (from sternum pain) and barely able to get myself out of bed. 3 months like that is fairly brutal... having that be someone's everyday life I can't imagine... having to wake up and face it everyday is difficult enough as you probably know.
The amazing thing is the biologic treatment I used with my worst flare ever literally removed all traces and started reversing the joint damage in less than a week - some don't respond as quickly. I was lucky.
The amazing thing is the biologic treatment I used with my worst flare ever literally removed all traces and started reversing the joint damage in less than a week - some don't respond as quickly. I was lucky.
I thought the max prescription dosage of Ibuprofen was 1800 mgs. daily, your dosage is double that. I presume you've discussed that with your doctor. I'm wondering how long your liver/stomach will tolerate doses of an NSAID so much higher than the typical maximum prescription dosage? Does ramping up the mgs on that drug increase its efficacy for your condition? Very curious.
Also, have you tried other NSAIDs like Voltaren, Aleve (can't recall the real name, that's a brand name) Meloxicam (that's the prescription one I take now, very effective for me), etc.? They really do vary in efficacy from person to person, one of the other drugs may work better than Ibuprofen for you. It's hit or miss with those drugs, you have to find one that works for your condition.
Also, have you tried other NSAIDs like Voltaren, Aleve (can't recall the real name, that's a brand name) Meloxicam (that's the prescription one I take now, very effective for me), etc.? They really do vary in efficacy from person to person, one of the other drugs may work better than Ibuprofen for you. It's hit or miss with those drugs, you have to find one that works for your condition.
BTW I have found the whole glucosamine thing to be nothing but snake oil. Any one actually have results with that stuff?
03-14-09, 08:25 AM
#34
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I've been diagnosed with Psoriatic Arthritis for the last 8 years. I was fortunate that I got on Enbrell before it was actually approved for psoriatic arthritis or psoriasis. Currently I am on Humira after a lot of debate and discussion with my docs and have found more success with the Humira for the skin psoriasis.
I did develop the skin psoriasis about 3 years prior to developing the arthritis. And I believe it's about a 5% of psoriatic patients DO NOT have skin psoriasis so it is rare but not does happen.
jfmckenna be careful with your ibuprofen intake. It will tear apart your stomach if you continue to take high doses often. I have found that double doses of Humira or Enbrell for 1-2 months will quell almost any flare-up I experience. Of course I have great insurance since these drugs aren't cheap.
As far as biking unless I'm experience a absolutely horrible flare-up in my feet riding doesn't bother me.
Good luck all on the arthritis, it's a nasty little thing that many of us learn how to live with and accommodate for. I consider myself lucky that I have had good response with the biologics and I've got great health care benefits. I know where I'd be if I didn't have it.
--Sax
I did develop the skin psoriasis about 3 years prior to developing the arthritis. And I believe it's about a 5% of psoriatic patients DO NOT have skin psoriasis so it is rare but not does happen.
jfmckenna be careful with your ibuprofen intake. It will tear apart your stomach if you continue to take high doses often. I have found that double doses of Humira or Enbrell for 1-2 months will quell almost any flare-up I experience. Of course I have great insurance since these drugs aren't cheap.
As far as biking unless I'm experience a absolutely horrible flare-up in my feet riding doesn't bother me.
Good luck all on the arthritis, it's a nasty little thing that many of us learn how to live with and accommodate for. I consider myself lucky that I have had good response with the biologics and I've got great health care benefits. I know where I'd be if I didn't have it.
--Sax
03-14-09, 08:41 AM
#35
aka Phil Jungels
At 63, Arthur is starting to try to assert himself in a lot of my joints.
My doctor says exercise (bicycling being one of the best) is helping to keep it at bay. The more exercise I can stand, the better my joints seem to stay liquid.
On a really bad day, before starting out, I gobble a couple aspirins, which is also good for my heart. I'm trying to stay away from NSAIDS, as their benefit is outweighed by their negatives IMHO.
My doctor says exercise (bicycling being one of the best) is helping to keep it at bay. The more exercise I can stand, the better my joints seem to stay liquid.
On a really bad day, before starting out, I gobble a couple aspirins, which is also good for my heart. I'm trying to stay away from NSAIDS, as their benefit is outweighed by their negatives IMHO.
03-14-09, 08:44 AM
#36
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i don't have it, but a friend has an arthritic shoulder as a result of a shoulder separation. he takes this SAMe (or s-adenosyl-methionine) supplement and says it helps a lot.
03-14-09, 01:54 PM
#37
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I've taken Enbrel before with excellent results on the PA, however, side effects of it (neurological) prevented me from using it for more than a year and I won't go back to it because of that. I've been using Humira on and off for the past 2-3 years. Both are TNF-Alpha inhibitors. The only major cycling related side effect is muscle weakness/fatigue, but it doesn't stop me... just slow me down from time to time. It's worked very well on my PA.
Biologics are expensive to produce, and some insurance companies make patients go through the usual treatment order showing no success before they'll cover them. They're proteins that are injected and work by targeting specific immune system response mechanisms that lead to inflammation. They seem to work well for RA, JRA & PA specifically.
03-14-09, 02:45 PM
#38
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Everybody gets arthritis. It's when, not if. And if you play sports at all (and many here do) and ever got an injury or had surgery (ditto), you'll have arthritis somewhere soon. My right knee feels like somebody pumped it up to 150psi, it gets stiff, swollen, a bit sore. Makes it hard to hammer on the bike. Reacts to weather (it's barometric, stormy weather or fronts moving in sets it off). Happily my arthritic knee responds well to Glucosamine supplements (they have to have MSM and Chondroitin too). Those Synvisc shots were like a Miracle Cure, but they're pricey and somewhat painful (but you only need three over two weeks, then you're good for 8-12 months).
My knee had gotten to the point where I had made the appointment for another round of Synvisc. I had those shots in early February of 2008. By this past September my knee starts getting cranky again. My doctor prescribes Meloxicam, an anti-inflammatory I hadn't used before. Miracle Drug 2, my knee gets stiff, I take that pill for one or two days, I'm good for a week. I was averaging only one Meloxicam a week through December 08. Then I start taking them every day, but the knee is pretty stiff, so I schedule the shots. Then I figure let me try a pricier version of the Glucosamine supplement I use. I start reading the labels at the store, and I notice that the one I'm taking does NOT have this crap called 'MSM'. So I start taking one that does have the MSM. Within 4-5 days my knee feels fine. This was over a month ago, and so far, so good. I talk to other people who take these supplements, and several other people confirm that the MSM (in conjunction with Glucosamine) is critical. I don't think it's a Placebo Effect, particulalrly since I expected it NOT to work, and because it has been working for a month now, and I've been riding and training pretty hard.
So far so good.
My knee had gotten to the point where I had made the appointment for another round of Synvisc. I had those shots in early February of 2008. By this past September my knee starts getting cranky again. My doctor prescribes Meloxicam, an anti-inflammatory I hadn't used before. Miracle Drug 2, my knee gets stiff, I take that pill for one or two days, I'm good for a week. I was averaging only one Meloxicam a week through December 08. Then I start taking them every day, but the knee is pretty stiff, so I schedule the shots. Then I figure let me try a pricier version of the Glucosamine supplement I use. I start reading the labels at the store, and I notice that the one I'm taking does NOT have this crap called 'MSM'. So I start taking one that does have the MSM. Within 4-5 days my knee feels fine. This was over a month ago, and so far, so good. I talk to other people who take these supplements, and several other people confirm that the MSM (in conjunction with Glucosamine) is critical. I don't think it's a Placebo Effect, particulalrly since I expected it NOT to work, and because it has been working for a month now, and I've been riding and training pretty hard.
So far so good.
03-14-09, 03:49 PM
#39
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03-14-09, 04:14 PM
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Everybody gets arthritis. It's when, not if. And if you play sports at all (and many here do) and ever got an injury or had surgery (ditto), you'll have arthritis somewhere soon. My right knee feels like somebody pumped it up to 150psi, it gets stiff, swollen, a bit sore. Makes it hard to hammer on the bike. Reacts to weather (it's barometric, stormy weather or fronts moving in sets it off). Happily my arthritic knee responds well to Glucosamine supplements (they have to have MSM and Chondroitin too). Those Synvisc shots were like a Miracle Cure, but they're pricey and somewhat painful (but you only need three over two weeks, then you're good for 8-12 months).
My knee had gotten to the point where I had made the appointment for another round of Synvisc. I had those shots in early February of 2008. By this past September my knee starts getting cranky again. My doctor prescribes Meloxicam, an anti-inflammatory I hadn't used before. Miracle Drug 2, my knee gets stiff, I take that pill for one or two days, I'm good for a week. I was averaging only one Meloxicam a week through December 08. Then I start taking them every day, but the knee is pretty stiff, so I schedule the shots. Then I figure let me try a pricier version of the Glucosamine supplement I use. I start reading the labels at the store, and I notice that the one I'm taking does NOT have this crap called 'MSM'. So I start taking one that does have the MSM. Within 4-5 days my knee feels fine. This was over a month ago, and so far, so good. I talk to other people who take these supplements, and several other people confirm that the MSM (in conjunction with Glucosamine) is critical. I don't think it's a Placebo Effect, particulalrly since I expected it NOT to work, and because it has been working for a month now, and I've been riding and training pretty hard.
So far so good.
My knee had gotten to the point where I had made the appointment for another round of Synvisc. I had those shots in early February of 2008. By this past September my knee starts getting cranky again. My doctor prescribes Meloxicam, an anti-inflammatory I hadn't used before. Miracle Drug 2, my knee gets stiff, I take that pill for one or two days, I'm good for a week. I was averaging only one Meloxicam a week through December 08. Then I start taking them every day, but the knee is pretty stiff, so I schedule the shots. Then I figure let me try a pricier version of the Glucosamine supplement I use. I start reading the labels at the store, and I notice that the one I'm taking does NOT have this crap called 'MSM'. So I start taking one that does have the MSM. Within 4-5 days my knee feels fine. This was over a month ago, and so far, so good. I talk to other people who take these supplements, and several other people confirm that the MSM (in conjunction with Glucosamine) is critical. I don't think it's a Placebo Effect, particulalrly since I expected it NOT to work, and because it has been working for a month now, and I've been riding and training pretty hard.
So far so good.
03-14-09, 05:00 PM
#42
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I focused on bicycling so much last year that I didn't do anything for my upper body. I don't feel like I can get away with that now. I hear a lot of you talking about knees and hands. My pain is all hips, low back and shoulders/neck. I'm going to add weight training to my schedule so I can strengthen the muscle groups around these joints. I started today.
I am SOOOO glad that I was already bicycling when this hit. I have to make adjustments rather than start from scratch. Undoubtedly we are better off than people who don't get away from their desks and off their couches.
I am SOOOO glad that I was already bicycling when this hit. I have to make adjustments rather than start from scratch. Undoubtedly we are better off than people who don't get away from their desks and off their couches.
03-14-09, 05:10 PM
#43
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Psoriatic arthritis here...
Suffering about 15 years (skin about 20 years)...
Already have some destructive changes...
Without the Enbrel I can not roll over in bed, turn my neck to back up a car, or make a fist...
When doped up I can ride Mt. Washington...
Suffering about 15 years (skin about 20 years)...
Already have some destructive changes...
Without the Enbrel I can not roll over in bed, turn my neck to back up a car, or make a fist...
When doped up I can ride Mt. Washington...
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03-14-09, 07:30 PM
#44
Tiocfáidh ár Lá
https://www.psoriasis.org/treatment/psa/dmards.php
I've taken Enbrel before with excellent results on the PA, however, side effects of it (neurological) prevented me from using it for more than a year and I won't go back to it because of that. I've been using Humira on and off for the past 2-3 years. Both are TNF-Alpha inhibitors. The only major cycling related side effect is muscle weakness/fatigue, but it doesn't stop me... just slow me down from time to time. It's worked very well on my PA.
Biologics are expensive to produce, and some insurance companies make patients go through the usual treatment order showing no success before they'll cover them. They're proteins that are injected and work by targeting specific immune system response mechanisms that lead to inflammation. They seem to work well for RA, JRA & PA specifically.
I've taken Enbrel before with excellent results on the PA, however, side effects of it (neurological) prevented me from using it for more than a year and I won't go back to it because of that. I've been using Humira on and off for the past 2-3 years. Both are TNF-Alpha inhibitors. The only major cycling related side effect is muscle weakness/fatigue, but it doesn't stop me... just slow me down from time to time. It's worked very well on my PA.
Biologics are expensive to produce, and some insurance companies make patients go through the usual treatment order showing no success before they'll cover them. They're proteins that are injected and work by targeting specific immune system response mechanisms that lead to inflammation. They seem to work well for RA, JRA & PA specifically.
03-14-09, 08:14 PM
#45
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I focused on bicycling so much last year that I didn't do anything for my upper body. I don't feel like I can get away with that now. I hear a lot of you talking about knees and hands. My pain is all hips, low back and shoulders/neck. I'm going to add weight training to my schedule so I can strengthen the muscle groups around these joints. I started today.
I have also gotten serious about core and upper body work at the gym. I recommend it.
Now if I can just shake this flu!
11-03-09, 09:57 AM
#46
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Reviving an old thread here, but I just wanted to chime in and say that I've been suffering with Ankylosing Spondylitis for about 5 years yet my cycling is stronger than ever. It's mostly under control with a battery of NSAID and anti-rheumatic drugs, despite a recent flare-up that won't seem to die.
The disease is actually what got me back on a bike after several years away from it. Walking just hurt so much during that first flare-up that sitting to get places was a huge relief. Then, as inflammation got under control I found that riding just felt good and that I was pretty good at going fast. Now I'm looking to do base training over the winter and hopefully be able to race come spring. Of course, all plans are at the mercy of the AS.
My Rheumatologist is planning to get me on biologic drugs at some point soon which I have mixed feelings about but truthfully I can't keep taking the doses of anti-inflammatories that I have been. Anyone have input as to how they affect performance?
If there's one positive to all this, it's that it pushes me to ride as much and as hard as I can and ride the best bikes I can afford because sooner than later I'll be back to coasting on a cruiser because it hurts too much to walk.
The disease is actually what got me back on a bike after several years away from it. Walking just hurt so much during that first flare-up that sitting to get places was a huge relief. Then, as inflammation got under control I found that riding just felt good and that I was pretty good at going fast. Now I'm looking to do base training over the winter and hopefully be able to race come spring. Of course, all plans are at the mercy of the AS.
My Rheumatologist is planning to get me on biologic drugs at some point soon which I have mixed feelings about but truthfully I can't keep taking the doses of anti-inflammatories that I have been. Anyone have input as to how they affect performance?
If there's one positive to all this, it's that it pushes me to ride as much and as hard as I can and ride the best bikes I can afford because sooner than later I'll be back to coasting on a cruiser because it hurts too much to walk.
11-03-09, 02:45 PM
#47
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wow I'm so lucky my condition hasn't been this bad. My skin is pretty manageable with some creams but my knees tend to give me hell. I'm not taking any meds for the arthritis though. Tried a few different pills when I had insurance but they were still too expensive and side affects scared the crap out of me.
11-03-09, 03:15 PM
#48
Senior Member
I have Rheumatoid arthritis and Osteo arthritis, I didn't want to go half way. I'm on a pretty good dose of Methotrexate (8) and Naproxen. I take Osteo Bi-Flex as well. Some days are pretty rough, but you just have to live with it. I also had cancer and so far I'm doing pretty good. I know it's not many miles to you young guys, but I'm pretty happy getting 5000 miles a year. Anyhow good luck and hang in there.
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11-03-09, 03:54 PM
#49
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41 y/o and both knees have arthritis. pain goes away when I ride...most of the time, running is out of the question and nearly impossible. If I stop riding for a couple of weeks, then the pain intensifies to the point where I can barely walk straight. Somehow riding regularly has helped keep the pain at bay and havent had to use a cane in 5 years.
11-03-09, 05:17 PM
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I'm only 15 and have it in both my knees. Technically its from biking but it really was the car that hit, me not my bike, that caused. Honestly it hurts daily A LOT. but i just suck it up since my dad already doesn't like me biking(probably cuze the shaving)