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Adaptive Cycling: Handcycles, Amputee Adaptation, Visual Impairment, and Other Needs Have a need for adaptive equipment to ride to compensate for a disability or loss of limb or function? This area is for discussion among those of us in the cycling world that are coming back from traumatic circumstances and tell the world, "No, you are not going to beat me down!"

How Many Of You Have A Disability?

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Old 05-12-06, 03:30 PM
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I don't consider it a handicap, but many people I have met do. I am missing two fingers on my left hand, size is about 33% smaller than my right and both the pinky and index finger are basically thumbs with only one knuckle. It makes for interesting braking techniques and a lot of mods to adapt.
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Old 02-22-07, 12:58 PM
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Pardon this thread is so old, but there are no others like it... I found it on a search...

Does anyone here cycle, that is disabled? I mean being unable to support yourself with employment.
People see me cycling often and sometimes think I must not be disabled, because how could a disabled person ride a bicycle
I have two neurological conditions, and cycling is a BIG help on my quality of life - thanks to conditioning (being inactive is a very bad idea in my case), transportation, and mental satisfaction. I don't have very good endurance or power but good enough to get around and enjoy it sometimes.
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Old 02-22-07, 02:18 PM
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First off...big kudos to powerhouse on cycling with those health issues.

While mine are relatively minor:

Slightly worn left knee from all the years of running and time in the Marines. Cycling doesn't seem to bother it at all though.

Bad left shoulder socket and rotator cuff.

Carpel tunnel in both wrists

Minor back problems from incidents in the military.

Also, I found out recently that all my older siblings and mother suffer from arthritis that seems to have come on in their late thirties to early forties, so I'm right in that window to be struck with it myself.
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Old 02-22-07, 02:21 PM
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Originally Posted by Dolomiti
Pardon this thread is so old, but there are no others like it... I found it on a search...

Does anyone here cycle, that is disabled? I mean being unable to support yourself with employment.
People see me cycling often and sometimes think I must not be disabled, because how could a disabled person ride a bicycle
I have two neurological conditions, and cycling is a BIG help on my quality of life - thanks to conditioning (being inactive is a very bad idea in my case), transportation, and mental satisfaction. I don't have very good endurance or power but good enough to get around and enjoy it sometimes.
I would imagine people would look at you and assume that if you can cycle, than you must be able to work and couldn't possibly have a disabililty. There are many in society who are too close minded and assumptive.

Having an outlet...in your case cycling, is extremely important. I'm glad you are well enough to at least be able to enjoy it.
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Old 02-22-07, 02:43 PM
  #30  
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I have epilepsy.
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Old 02-22-07, 03:01 PM
  #31  
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I just suffer from occasionally stupidity.
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Old 02-22-07, 03:05 PM
  #32  
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I have Attention Deficit Disorder and Obsessive Compulsive Disorder.

I used to take over 45mg of Adderall XR a day and a lot Buspar in the morning.

Now I don't take anything, except for riding and gaming, they help quite a bit.

I was also born with the ability to pwn hard.
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Old 02-22-07, 03:29 PM
  #33  
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Powerhouse, good for you!

Cycling has helped me overcome a disability (Getting debilitating weight off and getting out of a wheelchair and off oxygen), and I know that feeling of accomplishment I'm certain you feel (and deserve to feel, believe me!). I have a couple of friends in town here that ride a tandem recumbent trike that are both disabled, matter of fact, I helped them get the trike. He's quadraplegic and his wife is 100% blind. She's the stroker and he steers and handcranks. A local framebuilder I know donated the frame materials and build, and I scavenged the wheels and dérailleurs and other components out of my parts bins and talked a local bike shop into donating cranksets and other things I didn't have.

I don't mention them because I want praise, because I actually played a very small role in the process other than connecting up some people and some spare parts. Instead, I'd rather be emul;ated by people here in Foo, in that if you see a need, help out!

Originally Posted by powerhouse
Disabilities can seriously affect who people are and what they do in life. Even in this day and age, society is long on what s/he is 'unable' to do and short on means and alternatives of compensating for it.
I am a cyclist with three disabilities: I'm legally bind (20/400 acuity), epileptic, and have glaucoma. None of these are badges of honor. However, I've been able to compensate for them fairly well. To compensate for my legal blindness, I wear a special pair of eyeglasses with a small telescope so that I'm able to see traffic, road signs, etc. while riding. This feature earned me the nickname of "Telescope". Medical science has been fortunate enough so that I can keep epileptic seizures at bay (most of the time). As for the glaucoma, I'm able to cope by taking special eyedrops. Doctors had recommended that I not take up bicycling. Now they support me in it.

I could go on about how my disabilities have affected me in other areas of life (jobs that I am unable to do, activities that aren't possible, etc.) but will keep it to bicycling since that is what this chatroom site is for. You may choose the extent of how much you wish to discuss.

So: How many of you have a disability? What alternatives do you use or how do you compensate?
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Old 02-22-07, 03:37 PM
  #34  
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I apparently have rectal cranial inversion. Once you got that, everything else is pretty much not worth mentioning.
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Old 02-22-07, 03:52 PM
  #35  
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Bad Dyslexia, an annoying as hell speech impediment and bad hips.

Other then that everything is trivial.
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Old 02-22-07, 04:09 PM
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Does cancer count?
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Old 02-22-07, 04:33 PM
  #37  
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Originally Posted by Travelinguyrt
Yeh I have a few probs also but are MINOR compared to others so I delete them from my life and just mosey on thru life

Guy down the street was beaten in HS now has epelipsy but is the most fanstatic skilled craftsman with wood, I envy him his skills

Young kid early 30s I see at local B&N store ;in a wheelchair nothing from waist down, meet him one day as I watched him exit car, lifted chair over his head and put it on the ground then shifted self on to it,anything to envy?, yeh his spirit, and he envies me that I can ride a bike

When I have a down day I think about these guys, how VERY lucky I am
Amen. I sometimes feel like i take advantage of being able to do things others don't. And that gives me inspiration to do well in the races and training i partake in. I have experienced people who can't find joy in anything, and to walk, talk, see, breathe, and run makes me happier than any amount of money could.
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Old 02-22-07, 08:20 PM
  #38  
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I did. I had it as a child and my body somehow compensated for it.

I'm not going to tell what it is here...but if you're really curious, PM me.
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Old 02-22-07, 09:38 PM
  #39  
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Originally Posted by RATBOY
Does cancer count?
Sorry to hear that, Ratboy. I'd say yes.

Tom, that tandem recumbent trike sounds amazing! They must have so much fun.

As for me, I wear a right-leg prosthesis after a bout with cancer 17 years ago. I have never thought of it as a "disability", though -- that just doesn't seem like an accurate description!
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Old 02-22-07, 09:42 PM
  #40  
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Originally Posted by gbcb
Sorry to hear that, Ratboy. I'd say yes.

Tom, that tandem recumbent trike sounds amazing! They must have so much fun.

As for me, I wear a right-leg prosthesis after a bout with cancer 17 years ago. I have never thought of it as a "disability", though -- that just doesn't seem like an accurate description!
They have a ball with it, and got a lot of freedom they otherwise wouldn't have had. One of the better moments I've had was when we took it over to their place! Man, the look on both of their faces when he saw it and told her what it was.......absolutely priceless! Better than a couple of kids at Christmas!
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Old 02-22-07, 09:45 PM
  #41  
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Originally Posted by RATBOY
Does cancer count?
RATBOY, only if you see it as one. Yes, it can limit your activity, but treatment is getting more specific and less debilitating every year.

My wife, Crazylady, is a cancer survivor (so far), and our prayers are with you if you need'em!
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Old 02-22-07, 09:47 PM
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Originally Posted by Tom Stormcrowe
RATBOY, only if you see it as one. Yes, it can limit your activity, but treatment is getting more specific and less debilitating every year.

My wife, Crazylady, is a cancer survivor (so far), and our prayers are with you if you need'em!
Better answer than mine!
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Old 02-23-07, 07:23 AM
  #43  
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According to the tests - I would have ADD - but I have learned to compensate. My teachers in HS would have wanted to drug me for sure. I focus on using the ADD to notice everything around me and letting my assistance handle the details of getting things moved through that require patience and attention to those details.

I also have problems with my eyes - it is difficult for me to focus both eyes on anything - so again, I compensated by speed reading. It makes it difficult for me to proofread my own writing though - so I married an editor.

I have virtually no visual memory - almost zero. I carry a camera so I can take photos.

I have flat feet, so when I ran, it would only be short distances.

Even though I could have easily felt disabled with the two previous issues - they have turned into strengths because of how I had to overcome them. I have many abilities that allow me to compensate for the weaknesses I have so on balance, I sure have nothing to complain about.

Oh, and I have a genetic issue that makes my hands and arms hurt during cold weather (below 60). It is a circulation issue. I compensated by moving to where I am never cold. Some compensations are better than others. When I lived up north, during the fall, winter and spring, after driving, I would have to go to a sink with hot water and stick my hands in running hot water until they warmed up. Got more than a few strange looks I can tell you!
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Old 02-23-07, 08:33 AM
  #44  
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this post is going to be longer than i like or most will read...

epilepsy that im "lucky to be alive" from according to my first neuro. went untreated for 10 years. once treated all activites almost stopped and depression almost got the best of me. cycling survived but i lost playing ice hockey which i was a goalie and truly loved.

the first summer after diagnosed i rode maybe 200 miles the whole year. at the end of the year, i signed up for a 40 mile MS benefit ride. the first 30 were average but not great. the last 10 was absolute hell. almosty all uphill. i was standing the whole way peddling 3 or 4 times, waiting for the bike to almost come to a stop then peddling again just to keep moving. when i had finished the ride i knew i was ready to overcome everything that the last year had done to me. last year, over 2000 miles.

i was supposed to have brain surgery to remove the damaged section of my brain but opted to make medication cocktails to try and find something that works. so far i havent so i have numerous spells every day. i lost my license, got my car repossed, had to borrow thousands of dollars from my family to stop accruing insane debt, all while on disability. since then have found new job which gave me benefits in 3 months and have worked there for almost a year biking to work every day.

once i do a century im going to get a new tattoo based on biking with the national epilepsy foundations colors in it (blue/read). and im going to touch up another tattoo i have with lyrics from a radiohead song, "this one's optimistic".
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Old 02-23-07, 09:10 AM
  #45  
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How many of you have a disability? What alternatives do you use or how do you compensate?
question 1; i do
question 2; meds, exercize and focusing on good mental health/attitude (which is the hardest to do).
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Old 02-23-07, 09:19 AM
  #46  
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My wife says I have lots of disabilities.

My youngest son is autistic (high functioning). His biggest problem is being able to find a job. He had a job as a landscaper/laborer with the county school system. After about 2 years he got tired of some of his co-workers making comments and teasing him, so he quit.
He hasn't been able to get another job since.
I bought a mtn bike for him to ride. He enjoys it but can't or won't shift gears on the bike, so he rides everywhere with the chain on the middle chainring and cog #4, or is it #5 (?).
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Old 02-23-07, 09:29 AM
  #47  
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I have been debating responding to this.

I believe legally I am. However I do not consider myself disabled in the least. There is nothing I can't do if I want. My "disability" is a physically misformed hand. My left hand is about 30% smaller than my right. My first finger and pinky are missing the 2st knuckle (imagine 3 thumbs) and the 2 middle fingers are "cut off" where the first knuckle would be. In theory this should cause lots of problems but in reality the only time I have ever noticed my hand is cycling and weight lifting. I have a very limited grip so I end up compensating my grip so my hand doesn't fly off a 500pnd deadlift or my bike when I am 10ft in the air. OTher than that I type faster than anyone I know and working manual labour I was always the fastest worked scoring the highest piece points.

Funny story, when I left the factory after 5 years, they had a party for me. I shook my bosses hand one last time and he happened to notice my hand. He outright stared and said outloud so everyone could hear, "I would never have hired you if I knew about your hand". I almost bust a gut laughing as did everyone in the room. (he could never see my hand because it was a metal shop, we needed to wear protective gloves all the time)

Back in the day war amps wanted to make me a poster child for some sports products for amputees. I became very offended. I told them (at 13) to go find someone with a disability that needed help.
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Old 02-23-07, 10:08 AM
  #48  
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Originally Posted by Maelstrom
My "disability" is a physically misformed hand. My left hand is about 30% smaller than my right. My first finger and pinky are missing the 2st knuckle (imagine 3 thumbs) and the 2 middle fingers are "cut off" where the first knuckle would be. .
My wife has about the same thing. Never really could use a 10 speed. I built her up a bike with flat bars. Put a grip shift and a MTB thumb shifter on the right side along with a dual cable break lever from a tandem that controls front and back brakes at the same time. Still dosen't bike a lot but when she does, she can use the bike to it's full potential.
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Old 02-23-07, 10:55 AM
  #49  
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Originally Posted by librarian
My wife has about the same thing. Never really could use a 10 speed. I built her up a bike with flat bars. Put a grip shift and a MTB thumb shifter on the right side along with a dual cable break lever from a tandem that controls front and back brakes at the same time. Still dosen't bike a lot but when she does, she can use the bike to it's full potential.
I had considered doing this, but for dh you need to be able to control both. I simply inverted the brakes (left lever for rear brake) as you need a lot less stopping power in the rear. I think the biggest issue is when I ride with one finger on the brake, I only have my pinky holding my hand on the bar haha
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Old 02-23-07, 11:14 AM
  #50  
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At one of the local charity rides I saw a rider on a flat bar roadie that was an amputee, one arm at the elbow. He had more bike control on one of the sketchier downhills than I did. Earned my respect for just being on a bike, but seeing how well he was able to control it was an inspirtation.

I've been fairly lucky thus far in life. Had a healthy childhood over all, and nothing that I would consider a disability. I did have a bout with skin cancer, and extensive reconstructive surgery on my jaw to correct my bite. I just cross my fingers I continue to be so lucky.
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