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New medical condition, anyone else?

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New medical condition, anyone else?

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Old 07-13-18, 09:58 PM
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TBeghtol 
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New medical condition, anyone else?

Had surgery recently to remove a large part of my colon and now have a (hopefully) temporary colostomy.

Any else been there and have some suggestions on continuing to ride with my new friend?
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Old 07-13-18, 10:21 PM
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CliffordK
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Empty the bag before going out on a ride?

Perhaps design a custom sprinkler system for those unannounced wheel suckers.
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Old 07-14-18, 07:55 PM
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Kurt Erlenbach
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I had an ileostomy for six months after losing a chunk of my colon to cancer. I started riding after it was reversed, so I can't help with your question about how to address it while trying to ride. Just when I figured out how to deal with the bag, the tape, the glue and all the rest, it was reversed. I as really glad to get it reversed, but getting the colon reconnected was very painful. I started riding then, and I think it saved my life when the colon cancer came back. Here's what I know about having an ostomy bag. The only way to control what comes out is to control what goes in. Your diet really matters. Foods that cause gas are deadly. A low residue diet is helpful. Listen to your doctor - more importantly, listen to the nurses. They're the ones who know how to deal with the day-to-day life with a bag. BTW, I've got a really good ostomy joke it you're interested.
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Old 07-14-18, 08:06 PM
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I can say this ... one of the people I know that rides oodles of double centuries and endurance races has an ostomy. Even if you don't get a reversal ... it shouldn't cramp your style.
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Old 07-14-18, 08:34 PM
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Thank you for the replies.
Definitely a learning experience, and you are spot on about information from Drs. vs Nurses.
As much as I respect my surgeon and the general advice he has given me post-op, the Wound care/Ostomy Nurse was the real source of information.
She took a couple of hours with the wife and myself making sure we had all our questions answered and could take care of both my incision and ostomy.

Diet is still being fine tuned. Some of the things I really enjoyed ( and supposed to be good for you) are out for now. Broccoli cauliflower, cabbage, beans etc don't work out too well. Coffee makes everything run through quickly. I do miss coffee... But other than that avoiding fried foods, limiting red meat, and being conscious of not getting too much fiber I eat pretty normally now 2 months after surgery.

I know of many people doing all the things I formerly did and intend to do again with ostomy.

I would appreciate a good joke, as I have a penchant for finding humor in just about any situation.
(Got me in trouble a couple of times while in an Air Force hospital and being my usual irreverent Army self.)

Thanks again,

Tim
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Old 07-15-18, 09:41 AM
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Your best friend is now the ostomy nurse. Send her flowers and chocolates.

FODMAPS diet will reduce the gas.

The most common error I see is failure of ostomy patients to keep up with their fluids in summertime. I’ve seen ostomy patients go into renal failure from long motorcycle rides in the middle of July.

Don’t lose heart. I remember an rather elderly lady who was a cyclist diagnosed with colon cancer, went through the operation and received chemotherapy. I saw her on a club ride 6 months later. We chatted, the ride started, and I waved at her backside as she sped off into the distance. Holding her wheel was not an option for me, she was too dang fast.
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Old 07-15-18, 11:56 AM
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Here's my ostomy joke. I got this from my mother, who got it from a friend who'd had a colostomy for many years. She said she had named her ostomy bag after her ex-husband, because they're both full of s**t. You can modify the joke as appropriate. If I had an ostomy bag now, I'd name it after Donald Trump.
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Old 07-15-18, 06:24 PM
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+1 the ostomy/wound care nurse will be an excellent resource. I've dealt with many an ostomy during my career as an RN, but never had one myself.

As an aside, whenever I see teenagers with their brand-name "Hollister" apparel, I always think of ostomy supplies.
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Old 07-15-18, 06:28 PM
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Originally Posted by JohnDThompson View Post
+1 the ostomy/wound care nurse will be an excellent resource. I've dealt with many an ostomy during my career as an RN, but never had one myself.

As an aside, whenever I see teenagers with their brand-name "Hollister" apparel, I always think of ostomy supplies.
Ha, now when I see those folks I will, too!
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