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Fibromyalgia Advise

Old 11-12-11, 02:27 PM
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UpHill101
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Fibromyalgia Advise

I have been a cyclist for three years. I used to put in around 500 miles a week. But then I started to get sick and then I was diagnose with fibromyalgia. I cant really cycle anymore liked I use to but Im looking foward not backwards. The past two months I have change my diet to only organic foods(lots of Veggies and Fruits), with a little chicken and fish. I do not eat anything package or processed. I have never had a prolbem with weight but I thought changing my diet would help with my symtoms.

The point of this is post is not my story but for help/advice. I was wondering if there is any cyclists who race and train hard out there, who control their symtoms. I just want to control my muscle cramp/pain. Please let me know, thank you.
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Old 11-12-11, 02:32 PM
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The more you exercise the better you will ultimately feel. You have to be able to make yourself hurt in order to feel better.
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Old 11-12-11, 02:33 PM
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My sister who doesn't use this site used to bike a lot and was diagnosed with the same thing, she's gotten back to being functional and rocks her heavy cruiser on occasion but she never really came to biking, so kudos for you!
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Old 11-12-11, 02:44 PM
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to RUOkie,

Do you have fibromyalgia? Where are you getting your logic from? thanks...
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Old 11-12-11, 02:48 PM
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Originally Posted by UpHill101 View Post
to RUOkie,

Do you have fibromyalgia? Where are you getting your logic from? thanks...
It's been a while since my sis explained it to me, but when your under the affects instead of getting stronger your muscles just get exhausted right?
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Old 11-12-11, 02:55 PM
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Originally Posted by UpHill101 View Post
to RUOkie,

Do you have fibromyalgia? Where are you getting your logic from? thanks...
Doctor who takes care of people with it every day.
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Old 11-12-11, 03:43 PM
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Okay I have never heard that logic, if you had the doctors name that would help as well.... I push harder and harder but the pain just goes up with the amount I do...
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Old 11-12-11, 03:46 PM
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If you are talking about the artritis then you are right but I do not think the muscle pain works like that...
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Old 11-12-11, 03:56 PM
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Originally Posted by RUOkie View Post
The more you exercise the better you will ultimately feel. You have to be able to make yourself hurt in order to feel better.
Originally Posted by UpHill101 View Post
to RUOkie,

Do you have fibromyalgia? Where are you getting your logic from? thanks...
Originally Posted by RUOkie View Post
Doctor who takes care of people with it every day.
Originally Posted by UpHill101 View Post
Okay I have never heard that logic, if you had the doctors name that would help as well.... I push harder and harder but the pain just goes up with the amount I do...
I had the opportunity last summer to ride with a person that has it. I asked lots of question of her because my wife has it and I want my wife to start riding. In a nut shell working out is what the lady told me as to what works best to keep the pain away from her. She said starting out it was extremely painful but with time it has gone for the most part. She is in the upper midwest and to keep up with it will go south for two or three months so she can keep riding and working out.
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Old 11-12-11, 04:20 PM
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Originally Posted by UpHill101 View Post
Okay I have never heard that logic, if you had the doctors name that would help as well.... I push harder and harder but the pain just goes up with the amount I do...
Sorry, I was unclear.

I am the doctor who cares for patients with fibromyalgia.
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Old 11-12-11, 05:44 PM
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I have a lady friend with Fibro. Active yoga (at the Y) has made a huge difference in her life. She looks younger now (face and body) than she did when I met her three years ago.
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Old 11-12-11, 05:52 PM
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You have fibromyalgia- too much and too hard at exercise will make it worse, not better. Fibromyalgia is a mystery but it is very real. It sounds as though you have been out of regular exercising for awhile. Get back in without trying to kill yourself or capture your pre-diagnosis strength. There is no question that exercise is important in ameliorating the symptoms of FM, it is also pretty evident that excessive stress can make it worse. Hope it goes well for you.
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Old 11-12-11, 07:00 PM
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Originally Posted by surgeonstone View Post
You have fibromyalgia- too much and too hard at exercise will make it worse, not better. Fibromyalgia is a mystery but it is very real. It sounds as though you have been out of regular exercising for awhile. Get back in without trying to kill yourself or capture your pre-diagnosis strength. There is no question that exercise is important in ameliorating the symptoms of FM, it is also pretty evident that excessive stress can make it worse. Hope it goes well for you.

Well Im not going to stay inactive or ride less....

RUOkie do you have anything to add about this quote?

Lastly has anyone heard about muscle relaxors for Fibromyalgia suffers ? I heard it can do a lot..
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Old 11-12-11, 07:01 PM
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RUOkie what do you think about the post about not being active?
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Old 11-12-11, 07:09 PM
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Well, he is a surgeon, so I'm sure this is his area of expertise. There are many medications that can be helpful. You might want to find a physiatrist or rheumatologist to help you.
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Old 11-12-11, 07:30 PM
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OP, I have MS and many of the symptoms can be identical. Physical activity is really important but you have to know when to back off. A good yoga practice is beneficial for strengthening your core, regulating your breathing, and just peace of mind. There will be days when you just don't have it. Happens to me from time to time so I just enjoy the ride. With regards to muscle relaxers, don't take them prior to a ride. Trust me on this one.
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Old 11-12-11, 07:43 PM
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Okay will good yoga help supress the muscle tightness/cramp like pain. As for muscle relaxors why not before a ride, what about at night or very early before a ride? Do they help?
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Old 11-12-11, 08:00 PM
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Also has any tried to use GHB, I heard that some people with Fibromyaliga have seen some results from that... also what about skullcap tea ..does that stuff help?
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Old 11-12-11, 08:02 PM
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I get two kinds of pain; one is neuropathic and the other is due to spasticity. The only thing that helps the neuropathic pain are anti-seizure meds like Lyrica, Neurontin, etc. Muscle relaxers help alleviate pain due to spasticity by causing the muscle to, well, relax. This also means that you'll have less control over those same muscles hence the advice not to use them prior to a ride. I did use Zanaflex prior to a CompuTrainer session and I was pretty worthless. Many muscle relaxers are short-acting meaning that they start to work in a short amount of time and are effective for a short duration.

Yoga and stretching will help keep you more supple and help you relax. However, they won't suppress tightness or cramping.
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Old 11-12-11, 09:32 PM
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Originally Posted by UpHill101 View Post
Well Im not going to stay inactive or ride less....

RUOkie do you have anything to add about this quote?

Lastly has anyone heard about muscle relaxors for Fibromyalgia suffers ? I heard it can do a lot..
Now I hardly said stay inactive. I said ride but use your common sense. Everyone is different, some patients of mine withFM find it hard to do anything and for them, getting out and doing any kind of physical activity is essential. Others push the envelope and and find themselves in
severe pain from too much exercise. You will find out where you fit in.
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Old 11-12-11, 09:54 PM
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My wife has it. Three keys for her are diet, exercise and sleep. She has a prescription sleep aid. My understanding of what happens in her case is this: She's sore, so she doesn't want to exercise. Her soreness prevents her from sleeping soundly. The sleep aid improves her sleep, and regular exercise does actually make her feel better. Before she was diagnosed and treated, she wasn't sleeping well, didn't want to move around much, and each one fed the other, creating a downward spiral. Without sleep, her body couldn't heal, which made her not want to exercise or move around, which made her more sore, which affected her sleep. From what she tells me, inactivity kind of results in something like scar tissue forming in the muscles & tendons. Without regular exercise, it kind of takes over. With regular exercise, it's kind of like clearing the cobwebs and it beats back that "scar tissue" feeling.

The diet aspect is that she has found that some foods affect how she feels. She's cut out all meat except occasional fish and drinks no alcohol. Chocolate, maybe just a little once in a while.

One other thing is that stress tends to make it worse. Don't worry, be happy, feel better (easier said than done, I know).

She's had it for several years now and manages it pretty well most of the time.

She recently started riding again, but doesn't do it very often. She does like the Wii Fit thing, though. It gets her moving around in a lot of different ways.
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Old 11-13-11, 12:25 AM
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The last thing you want to do is push your self to hard!(choose your battles wisely)
You will pretty much guarantee worsening of your symptoms if you go for the strenuous work outs but aerobic exercise is important.(min.zone 5)
complete remissions are very,very rare.
If you have fm you usually have a plethora of drugs on hand, do to the many symptoms.
Like some have said, sleep is crucial. A supplement that has been posted on BF somatomax-works good for sleep-but you build up a tolerance pretty easy,so use on bad sleep nights.(mixing it up with your benadryll,flexeril,ambien,lunesta or whatever works)
I've had pretty good luck with lyrica-trying ldn (naltrexone) now pretty happy with it.(still early 3wks lol)
The cymbalta-Savella types mess with sleep to much.The ldn did for about a wk.
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Old 11-13-11, 12:32 AM
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Ghb-Is one thing I would like to try for sleep-but unless i cook my own don't think i could get a script or insurance to cover it!!
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Old 11-13-11, 12:35 AM
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This post my get me up to the 50 so i can private message you.LOL
5yrs and i still can't pm-wtf? I pm'ed like 4yr ago.lol
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Old 11-13-11, 09:14 AM
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My wife's diagnosis some years ago is very fortunately not current - the joint pain, sluggishness, and sleeplessness is gone. But she has had to deal with other apparently neurological issues that are all seeming to to trace back to the good old thyroid. Eating healthy, getting the thyroid meds balanced properly, and exercise have helped. And sleep - not just enough hours, but regularly scheduled hours.

Remember, each of us is an experiment of population 1, so what has worked for others may or may not work for you. I hope you do find the right formula, I can only imagine the misery having not had the syndrome to deal with myself, but I got the ugly picture watching my wife fight it.
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