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My crazy health story.

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My crazy health story.

Old 01-15-05, 11:32 PM
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steveknight
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My crazy health story.

I figured I would post this as it is pretty silly. I had not cycled in about 15 years. Been overweight since I was a kid. We were poor and when finally had lots of food it was from a fast food place my mom ran. Well you know what happens then.
Anyway for a year or so I had noticed my arms would be sore when I held things even light things. Never really figured it out and thought I was loosing muscle tone. I found no matter how little I ate I could not loose weight.
Well I got a nice racing bike July and it took a bit before I could ride 10 miles to work then I could ride both ways. I got a bit faster and it was a bit less work but it never got very easy. I tried different foods to get energy and I only found a little help. A lot of fruit and protein powder helped. I worked out what to eat and my diet was mostly the same each day. This is how I found all of my food allergies. Wheat was the biggie and then most grains and sugar was an issue too.
I found the allergies caused my lungs to tighten up a bit. I have asthma but it is not a big deal but my meds did not help this.
My doctor was pretty worthless all he could focus on was my asthma.
Well I did some research and it seemed I had a problem with Candida. I had the reasons for it too many antibiotics over the years and too many carbs and sugar. So I tired some of the treatments. But I needed to cut out my entire sugar intake. Well I had already done most of that but fruit was the last two go. It was one of the few things that did not cause allergic reactions.
Well I heard about kefir and how it helped and I made some cowís milk kefir. Well I had a huge reaction to it and I spent two weeks at home trying to breathe. This was the start of my serious food allergy reactions. I found all kinds of things I could not eat. It was pretty much anything that I was not eating at the time when I got so bad.
I had killed off the Candida and leaky gut too over. I had the same symptoms as before sore muscles low energy and the food allergies.
But the allergies were far worse. I goofed and ate something that triggered them a couple three times in a row I may miss a week of work. Just sitting there trying to breathe. I got meds from my doc a few times that helped get over it when it was so bad.
I tried all the doctor and naturopath supplements and I was allergic to them all. All I found to take was vita biosa http://www.sea-health.com/vita_biosa.htm and fiber. both were pretty important. All I could eat was meats eggs cheese (only cows milk cheese) some veggies mostly broccoli, cauliflower, onions and garlic and green beans and cucumbers and nuts. I lived on this and a multivitamin for several months. I donít remember when it really started to get so bad. Atleast 6 months I think but I donít remember for sure. All the months ran together in a blur of tight lungs off and on and sore muscles. If they were not too tight I could ride if only pretty slowly.
Between the Candida and the really bad leaky gut the max I could ride to work on my racing bike was 16mph average and home 14 on the best days. It got down to 12 to 14 going to work and 10 to 11 going home.
I got hit by a car about 3 months ago and was able to buy a recumbent. My crotch always hurt no matter what saddle I had. I did not know it but that was part of the sore muscle problem.
When it first started to get bad I was loosing up to 2# a week I had to eat atleast 3500 calories a day or more to make it. If I put off eating more then 4 hours I would get weak and shaky. I had to eat after I rode or I was in trouble.
I told my doc I could eat that much and loose the 2# a week even if I did not exercise and all the food problems I donít think he even listened to me.
Well there are a lot of details and struggles I went through but I kept at the riding and really had to watch what I ate. I had reactions off and on to very weird things.
Lets here is a list I could drink diet pop but not plain carbonated water. Sugar free gum got me. Well it has sugar alcohols in it. I could eat Frenchís mustard but not dry powdered mustard. I could not handle goatís cheese or sheepís milk cheese only cows milk no milk of any kind. Even splenda in the powder from got to me.
Well after awhile I got so I did not have to eat quite as much and was loosing a steady 1# a week. I ate a lot of nuts for the calories but I donít think my body digested them all that well. But I could skip a meal on weekends without a problem.
I was getting pretty sick of eating the same things all of the time. Eating was a chore with no pleasure and no new things. I had to be extremely careful of any pre prepared food. It limited me to almost nothing I could buy at a store besides the things I stated above.
But I finally started to get better. The food reactions were not as strong and did not add up to worse when I had a few in a row. Sometimes the first time I did not even know I had a reaction. I was so paranoid about trying new things I never knew if it was real or just the paranoia acting up.
But I got better and my lungs did better allergy pills (Sudafed for cold and allergies) helped more and more my inhaler worked better too. Well this last week my riding has improved enough that I have beat my fastest rides on my recumbent. My muscles are slowly getting less sore. For most of the time if you touched my calf muscle it really hurt even with a light touch. This mad riding pretty hard most of the time.
I had a lot of help from a customer that was a doc. He was the only one that listened to me. He told me that I was glucose intolerant. I had wondered why I could eat carbs and sugar and get no energy from them. Thatís been going on a long time. I used to get heartburn from eating a bowl of cereal while I was eating it. my heartburn has gotten far better since I cut the grains out. So I may have had the problem for a long time and it reached a peak along with the leaky gut.
But now I donít have sugar or junk food cravings really. All this week I did crave this fantastic chocolate cake I get locally. Friday I broke down and got some and as usual it did not taste anything special. Those foods donít really appeal to me anymore. I had a bag of popcorn at the movies Christmas Eve as my company Christmas dinner. It was ok but nothing special. It gave me horrible heartburn till 3 in the morning. I have not had it that bad since I cut out the grains.
So all in all I am getting better it is going to take my body awhile to recover though. It has a lot of healing to do. I donít think I gained any muscle the whole time this was going on. Riding the bent has been so much work there was no joy in it. But now I may get that bent grin soon (G)
I went down from 26 to 211 in the time this happened. I knew I was getting better when I jumped up to 213. Now I guess it is time to cut back on the nuts. I donít want to gain any weight back. I donít know if I have ever been this light since I was a kid.
So now I need to rely on fat for my fuel. I donít know when and if I will ever be able to use carbs as fuel. But I hope that I will end up with a surplus of energy. Before what I had before my rides was critical to how I rode. The longer I could go between eating and riding the better.
I hear people can eat a apple and ride 20 miles I could eat 10 and not go 20 with energy in reserve (G)
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Old 01-16-05, 12:12 AM
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Mr. Knight!
I'm so sorry you have had these troubles. You helped me when I was looking for a bike. I hope someone who posts in health and nutrition can give you some direct, beneficial advice.
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Old 01-16-05, 12:40 AM
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just so im more clear, were these allergies to the food just all of a sudden? like "before i would eat it, it was fine, but now when i eat it, i get a reaction?" i would recommend seeing a therapist. i forget which brand of therapy, but a therapist would help you a lot. i think a psycotherpist is what i am thinking of...
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Old 01-16-05, 12:48 AM
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No they were there for a long time I think. The only way I had been sick for years was upper respiratory infections that needed antibiotics. That my gut problems. That runs in my family and I seem to have it worse then anyone since my grandpa.
But they just got worse and worse and eating the same thing every day let me start identifying them. Carbs were pretty much all till I got really bad.
But I would not give in and I kept exercising as much as I possible could. Some days I could hardly go 8mph on the flats. But as long as I could somewhat breathe I rode.
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Old 01-16-05, 12:49 AM
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I left out I think the lung iusses were carb realted too but I just did not know it at the time. though my weight had not changed in several years and I was not super huge 5'11" and 270 at most.
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Old 01-16-05, 05:46 PM
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Hi Steve!

Someone suggested I read your story- it's amazing the problems you went through to figure out what was wrong. I really do wish you well with your health issues, seriously.

I don't know enough about nutrition to comment about that, but I would really suggest you seing a nutritionist or dietitian as soon as possible. Do call around beforehand and explain your story and see if a dietitian has experience with your problems. It definitely sounds a bit more special than the average person who walks in off the street for help!

Also check with your insurance. If you can get a doctor to confirm what you have, then they should be able to refer you to a dietitian so your insurance will pay for it. I think that should be your next step. A good dietitian will also give you food alternatives so you'll have more than 8 things to eat. A little more variety will make food more of an enjoyment for you than the chore it's been.

Good luck to you, and take care.

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Old 01-16-05, 06:26 PM
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Hi Steve,
I agree with Koffee in that you should seek the advice of a registered dietician, or have your family Doc refer you on to see a G.I. specialist (gastro/colonscopy). Just for the sake of curiosity what exactly do you mean by "leaky gut" . A multivitamin and/or a mineral supplement probably would help prevent any further problems, due to your poor nutritional intake your body is probably lacking in both.
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Old 01-16-05, 06:57 PM
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My insurance sucks so I canít afford too much doctor care. Well if my doc was effective that would be one thing but since he did not even try to help it is too much money to spend.
I know what I can and canít eat. Though I think as long as it does not have carbs I will be able to eat more things. But there are only so many combos of the things I can eat.
There is nothing besides the supplements that help leaky gut. I could not take any of them as I reacted to them. There is nothing for glucose intolerance but loosing weight and I am doing that. I think I can handle more low carb veggies and thatís what I will be working on. I just did not want to have a reaction to a veggie that would not be worth it (G) well all of the things I reacted to were not worth it.
If I have to be low carb all of my life well there is nothing but to do it. I know what I need to eat to be healthy but my biggest problem was I could not eat it.
It will be awhile before my body recovers and becomes normal no matter what. Well I donít know what normal is itís been so long.
But leaky gut really stresses the immune system and thatís what takes so long to heal after the holes heal over.
If you want to read about it here you go. http://www.mdheal.org/leakygut.htm
I tried very single supplement recommended. I had allergic reactions to every one of them. Anything new in my diet I react too. I have found almost no exceptions at all. But I canít complain I know people who could eat even less then me
This was learning process for sure I had to learn about my body and know what was going on.
I donít have a lot of faith in doctors always fixing me since they were a big cause of this in the first place. Antibiotics is given out like candy anymore and it is causing a lot of problems.
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Old 01-16-05, 06:58 PM
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but I do take one a day multivitamin's and now a sugar free electrolite suppliment that has helped my leg cramps.
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Old 01-16-05, 07:33 PM
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oh.. i thought if all these things just happened all of a sudden then it just might be something going on in your life thats causing it, and a therapist would figure it out. i know this might sound like a joke or something, but im dead serious... try writing a letter to talk shows and the news and stuff like that. you might be able to get all the treatments and stuff for free, especially the talk shows. but the downside of it is that you'll "come out of the closet" on national television and everyone will know about you and such, but it could be worth it if you cant afford the medical attention you need. or write letters to colleges/universities and study groups and explain it to them. they might be able to do a case study group on you. it'd be a win/win situation. you'll get the treatment you need, and the students will be able to learn. of course the down side of it is that you'll be a gueina pig..

just some ideas if you can afford a nutrientist/dietrician...
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Old 01-16-05, 08:10 PM
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There are a lot of very low carb foods in the kosher section of the grocery store. I remember reading a bodybuilders magazine back in the late 1980s about this female bodybuilder that used to cut carbs and eat kosher products when it got close to competition. You may want to look into that.

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Old 01-16-05, 08:23 PM
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There are a few prepared things I can eat but most low carb goods are a problem. I can't handle the sugar alcohols that are in a lot of them. I could not handle them anytime really my wife started having problems with them too. Gas and the runs (G) even low carb foods that only have a gram or two of sugar or starch could set me off. I only found two sausages I could handle that were easy to get too. Some of the high end ones I could handle but I did not care for them that much
But most of us should not eat all of the prepared and connivance foods found in stores. Most have some sugar in them. Sugar is in so many things itís pathetic.
But I am getting better every day now. Progress was so slow but now it is getting faster.
There is little that can be done for leaky gut. A lot of doctors wonít even admit it is there. And people have such a wide range of reactions it is hard to diagnose it.
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Old 01-19-05, 09:59 PM
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well a litttle update. my doc boddy had me try some gluecose sports drink only glucose and no other sugar. all it did was tighten my lungs a but and slowed my ride down a ltitle. I had exacty the same to eat yesterday so it was not that.
I was hoping for a low calorie energy source.
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