Originally Posted by motorthings

it sounds like you are doing everything right (at least everything that generally gets suggested in these threads).

hate to say it, but you may want to keep trying new docs (who treats the pros/olympic athletes? who do top cyclists see/recommend?)...keep getting referrals and recommendations from folks here with experience, from docs that you respect, etc.

in my experience with other health conditions, persistence in finding the doc that "gets" your exact condition can take a lot of time. you may have to travel (mayo clinic, clevelan clinic, johns hopkins), but if it works out, it will be worth it.