Probably the best thing to do, get some business card blanks, print the name and address, web address and phone number for the national organization for that condition. When people ask stupid questions about the condition, simply state I/he/she has [name of condition] suggest they contact the organization and give them a card. The organization will be happy to send anyone information on the condition, the state of research, and why the person should make a rather sizable donation to the cause.
