Histiocytosis--or langerhan's Cell histiocytosis is a rare neoplastic disorder striking 1 in 250,000 to 1 in 750,000 children. It is fatal in 80 % of children diagnosed uner th age of 2. My daughter, luckily was diagnosed at age 5, and is now doing fairly well.
The website should be operational by tomorrow: fixhistio.org