Leg cramps from hell -- how do I shake this?
#52
Thanks -- the process has been weird. Here is basically how my last two days have gone:
I normally play rough so they've expressed concerns I could trigger internal bleeding in my head or somewhere else if I take a hard blow, so I've been asked to dial things back while the clots dissolve.
Me: Hey Doc, I feel fine but last week my leg hurt
Doc: You seem like a healthy guy and are probably fine, but I'll order a scan for the sake of being thorough. <orders scan>
Doc: You have DVT. I'm going to send you home with a grand worth of drugs, but I also think you need a colonoscopy
Me:
I come in for a sore leg and I need a camera up my butt? What gives?
Doc: I saw some stuff that's weird in a guy as fit as you. No need for concern at this point, but I want to follow up just to be safe.
The stuff they gave me (rivaroxaban) should not reduce aerobic capacity, is not sensitive to diet, and does not require monitoring. But it is stupid expensive.Doc: You seem like a healthy guy and are probably fine, but I'll order a scan for the sake of being thorough. <orders scan>
Doc: You have DVT. I'm going to send you home with a grand worth of drugs, but I also think you need a colonoscopy
Me:
I come in for a sore leg and I need a camera up my butt? What gives? Doc: I saw some stuff that's weird in a guy as fit as you. No need for concern at this point, but I want to follow up just to be safe.
I normally play rough so they've expressed concerns I could trigger internal bleeding in my head or somewhere else if I take a hard blow, so I've been asked to dial things back while the clots dissolve.
I've got a genetic predisposition toward clotting, so my blood clots quickly normally. I was on quite a high dose of Coumadin for the first few month to dissolve the clots, and was advised to exercise but the suggestion was that I should walk a lot, and if I did go for a bicycle ride, I was to choose quiet roads and ride with someone who could ring an ambulance if I happened to fall.
Then about 6 months later they lowered the dose to bring my blood clotting level to what most people consider normal. And finally about 6 months later, they took me off the Coumadin ... thank goodness. Within about a week, I felt like myself again!
Now, every time I fly or go in for surgery, I need a whole series of Clexane injections.
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#53
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Portland Fred
Joined: Oct 2005
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Bikes: Custom Winter, Challenge Seiran SL, Fuji Team Pro, Cattrike Road/Velokit, РOS hybrid
Mine was Coumadin Warfarin which was inexpensive, did require regular monitoring to get my INR level right, and left me tired and cold. If you've ever tried to wade through waist-deep water ... that's how I felt all the time. Like everything I did took so much extra effort.
They discussed a number of drugs with me and specifically dismissed warfarin both for the monitoring aspect (which cancels out a lot of the cost advantage) and side effects.
Presuming this stuff is doing what it's supposed to, I like it. Side effects have been a nonissue and even though there still is some residual pain, I feel good enough it's hard to believe there's anything wrong with me.
#54
I was specifically worried about going through the experience you did because I immediately remembered how your situation played out and I know a few other people (including my bro) who were in that same boat.
They discussed a number of drugs with me and specifically dismissed warfarin both for the monitoring aspect (which cancels out a lot of the cost advantage) and side effects.
Presuming this stuff is doing what it's supposed to, I like it. Side effects have been a nonissue and even though there still is some residual pain, I feel good enough it's hard to believe there's anything wrong with me.
They discussed a number of drugs with me and specifically dismissed warfarin both for the monitoring aspect (which cancels out a lot of the cost advantage) and side effects.
Presuming this stuff is doing what it's supposed to, I like it. Side effects have been a nonissue and even though there still is some residual pain, I feel good enough it's hard to believe there's anything wrong with me.
Have they said anything about precautions while travelling?
Years on, my left ankle still swells sometimes. So one of the things I do is to wear my compression stockings from time to time. For example, if we do a long-ish ride, and then go to an event after where I'll be sitting still for a while, I'll pop on compression stockings. Same if I know I'm going to be standing for a long period of time.
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#56
Thread Starter
Portland Fred
Joined: Oct 2005
Posts: 11,553
Likes: 54
Bikes: Custom Winter, Challenge Seiran SL, Fuji Team Pro, Cattrike Road/Velokit, РOS hybrid
Their main concerns at this point seem to be about triggering internal bleeding and they've scheduled other a couple other tests to follow up on some stuff they saw in my blood to make sure there's nothing serious lurking in the background. They will definitely give me another ultrasound to see how things are going -- my understanding is that will be in 3 months or so.
I'm hoping that the fact that I like to keep my blood pumping will facilitate dissolving those clots. I asked the docs if they could give me a silver lining to going through this (e.g. improved lung or secondary circulation function, fixes some other problem, etc.). Unfortunately, they couldn't think of a good way to spin this. The best thing that's come of it so far is it's given me an excuse to watch a particular video again because I totally feel like this guy.
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