Fibromyalgia Advise
#76
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Dude, you are in college and some Quack already diagnosed you with Fibromyalgia??? Seriously, rethink this and don't just accept the label. Fibromyalgia is considered by many a phony disease without any consensus in the medical profession. It is often the diagnosis that physicians give when chronic complainers of pain and fatigue come in and they cannot find any underlying legitimate diagnosis. I work in the medical field and the typical Fibromyalgia patient that we see are middle aged obese females who are dependent on prescription pain meds. Sorry, but this is what we see all too often. Just don't accept the diagnosis just yet.
https://www.reporternews.com/news/200...-fibromyalgia/
https://www.reporternews.com/news/200...-fibromyalgia/
#77
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https://www.huffingtonpost.com/2009/0..._n_165045.html
#78
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Well, unlike you apparently, I listen to my patients and resort to peer reviewed journals and not the Huffington post. Did it ever occur to you that FM patients are overweight because of their inability to work out from the disabling pain? Or that they were addicted to pain meds
because of this pain. Did it ever occur to you that because it is largely a mystery, that like many medical mysteries it is shoved aside by practioners as a "phony" disease because some just do not want to think. I know many, many hardworking, formerly active noncomplaining patients laid low by this mysterious malady. Your dismissive post reveals just the kind of mindset that ends up perpetuating the suffering is those afflicted.
because of this pain. Did it ever occur to you that because it is largely a mystery, that like many medical mysteries it is shoved aside by practioners as a "phony" disease because some just do not want to think. I know many, many hardworking, formerly active noncomplaining patients laid low by this mysterious malady. Your dismissive post reveals just the kind of mindset that ends up perpetuating the suffering is those afflicted.
#79
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Well, unlike you apparently, I listen to my patients and resort to peer reviewed journals and not the Huffington post. Did it ever occur to you that FM patients are overweight because of their inability to work out from the disabling pain? Or that they were addicted to pain meds
because of this pain. Did it ever occur to you that because it is largely a mystery, that like many medical mysteries it is shoved aside by practioners as a "phony" disease because some just do not want to think. I know many, many hardworking, formerly active noncomplaining patients laid low by this mysterious malady. Your dismissive post reveals just the kind of mindset that ends up perpetuating the suffering is those afflicted.
because of this pain. Did it ever occur to you that because it is largely a mystery, that like many medical mysteries it is shoved aside by practioners as a "phony" disease because some just do not want to think. I know many, many hardworking, formerly active noncomplaining patients laid low by this mysterious malady. Your dismissive post reveals just the kind of mindset that ends up perpetuating the suffering is those afflicted.
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. “He who fights with monsters might take care lest he thereby become a monster. And if you gaze for long into an abyss, the abyss gazes also into you.”- Fredrick Nietzsche
"We can judge the heart of a man by his treatment of animals." - Immanuel Kant
. “He who fights with monsters might take care lest he thereby become a monster. And if you gaze for long into an abyss, the abyss gazes also into you.”- Fredrick Nietzsche
"We can judge the heart of a man by his treatment of animals." - Immanuel Kant
#81
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Well, unlike you apparently, I listen to my patients and resort to peer reviewed journals and not the Huffington post. Did it ever occur to you that FM patients are overweight because of their inability to work out from the disabling pain? Or that they were addicted to pain meds
because of this pain. Did it ever occur to you that because it is largely a mystery, that like many medical mysteries it is shoved aside by practioners as a "phony" disease because some just do not want to think. I know many, many hardworking, formerly active noncomplaining patients laid low by this mysterious malady. Your dismissive post reveals just the kind of mindset that ends up perpetuating the suffering is those afflicted.
because of this pain. Did it ever occur to you that because it is largely a mystery, that like many medical mysteries it is shoved aside by practioners as a "phony" disease because some just do not want to think. I know many, many hardworking, formerly active noncomplaining patients laid low by this mysterious malady. Your dismissive post reveals just the kind of mindset that ends up perpetuating the suffering is those afflicted.
Last edited by Focuspokus; 11-15-11 at 08:33 AM.
#82
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You're use of the words "mysterious malady" speaks volumes to me implying there is a lot of room for error in diagnosing and differential diagnosis. It is the "go to" diagnosis when nothing concrete is found. You know this as a physician. No test for FM, just the process of ruling out other legitimate causes.
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That we lack the understanding of it now does not make it any less real for those that suffer from it nor does it mean that understanding is not forthcoming. One hundred and fifty years ago doctors spread death through obstetric wards world wide. A man willing to think and consider the impossible, that it was the doctors themselves that were the vehicle of death, was met with derision by the learned. I believe in the miasma theory they said. The man, I. P. Semmelviez (sp?), went insane trying to convince the medical establishment that simply washing hands between patient visits would lower the mortality rate from 50% to less than 5%. The point is obvious, that we know not should not be confused there being nothing to know.
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Fibromyalgia can masquerade or mimic other health anomalies. Wilson's temperature syndrome, CFS(chronic fatigue syndrome),
Endocrine issues...[Hypothyroidism(low metabolic function), progesterone hormone imbalance, etc.], ATP not being produced by the Mitochondria, Myelin Sheath issues around the nerves like in MS, Cushing’s Syndrome, Systemic Candida Albicans Overgrowth, Rheumatoid Arthritis...and others.
Endocrine issues...[Hypothyroidism(low metabolic function), progesterone hormone imbalance, etc.], ATP not being produced by the Mitochondria, Myelin Sheath issues around the nerves like in MS, Cushing’s Syndrome, Systemic Candida Albicans Overgrowth, Rheumatoid Arthritis...and others.
#85
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focuspokus-for the record I'm far from obese,and uphill101 stated he has no problem with weight.My diagnosis was about 20yrs ago and there was not 1 fda approved medicine for fms -the 3 med I know of are all pretty recent.
fms is only controversial,if you don't have it. I have to chuckle on how advanced we are!We as a country can't even balance a check book!
Back to fm my rheumatoid factor has always been pos.but sed rate is always normal.There is probably some underlying things that exasperate the symptons. Current methods of testing I'm pretty healthy, but trust me as jacked up as I can get-there something very real going on.
fms is only controversial,if you don't have it. I have to chuckle on how advanced we are!We as a country can't even balance a check book!
Back to fm my rheumatoid factor has always been pos.but sed rate is always normal.There is probably some underlying things that exasperate the symptons. Current methods of testing I'm pretty healthy, but trust me as jacked up as I can get-there something very real going on.
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focuspokus-for the record I'm far from obese,and uphill101 stated he has no problem with weight.My diagnosis was about 20yrs ago and there was not 1 fda approved medicine for fms -the 3 med I know of are all pretty recent.
fms is only controversial,if you don't have it. I have to chuckle on how advanced we are!We as a country can't even balance a check book!
Back to fm my rheumatoid factor has always been pos.but sed rate is always normal.There is probably some underlying things that exasperate the symptons. Current methods of testing I'm pretty healthy, but trust me as jacked up as I can get-there something very real going on.
fms is only controversial,if you don't have it. I have to chuckle on how advanced we are!We as a country can't even balance a check book!
Back to fm my rheumatoid factor has always been pos.but sed rate is always normal.There is probably some underlying things that exasperate the symptons. Current methods of testing I'm pretty healthy, but trust me as jacked up as I can get-there something very real going on.
Makes me wonder if many of the ailments that we have here in the USA are legitimate. I doubt people in Darfur suffer from Fibromyalgia or Chronic Fatigue Syndrome. Every other kid in this country has Autism or ADHD. Sign of the medical times. I'm sure there are a lot of people who agree but are afraid to speak up.
You cannot even be shy without the drug companies pushing Paxil on you for "social anxiety disorder".
#87
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The above mentioned health issues can be linked to Dysbiosis.
Myself frequently visiting health chat rooms, noticed the most
asked about health problem was Fibro. Most people that had been diagnosed in the past
with Fibro by a doctor(s) found they had limited solutions for them(anti-depressants, pain meds.)
What I found was people that were considered to have Fibro, had 14 or
more of the following issues that would affect their lives.
They include: Anxiety, Arthritis, Asthma, Attention Deficit, Autism, Brain Fog, Carpal tunnel, Colds, Flu,
Constipation, Diarrhea, Colitis, Crohn's, Depression, Chronic Fatigue, Fibromyalgia, Food Allergies, Hives, Eczema, Hypoglycemia, Hypothyroidism, Insomnia, Interstitial Cystitis, Leaky
Gut, Migraines, Mitral Valve Prolapse, PMS, Prostatitis, Sinus infections, Ear Infections
They would all usually score over 400+(very elevated) on the candida test(long form) by Dr. W. Crook M.D.
Most were female, 35 and older and in many cases the stress trigger was thought to be physical in nature, prior to their diagnosis.
Myself frequently visiting health chat rooms, noticed the most
asked about health problem was Fibro. Most people that had been diagnosed in the past
with Fibro by a doctor(s) found they had limited solutions for them(anti-depressants, pain meds.)
What I found was people that were considered to have Fibro, had 14 or
more of the following issues that would affect their lives.
They include: Anxiety, Arthritis, Asthma, Attention Deficit, Autism, Brain Fog, Carpal tunnel, Colds, Flu,
Constipation, Diarrhea, Colitis, Crohn's, Depression, Chronic Fatigue, Fibromyalgia, Food Allergies, Hives, Eczema, Hypoglycemia, Hypothyroidism, Insomnia, Interstitial Cystitis, Leaky
Gut, Migraines, Mitral Valve Prolapse, PMS, Prostatitis, Sinus infections, Ear Infections
They would all usually score over 400+(very elevated) on the candida test(long form) by Dr. W. Crook M.D.
Most were female, 35 and older and in many cases the stress trigger was thought to be physical in nature, prior to their diagnosis.
Last edited by toddbiker; 11-15-11 at 02:02 PM.
#88
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The above mentioned health issues can be linked to Dysbiosis.
Myself frequently visiting health chat rooms, noticed the most
asked about health problem was Fibro. Most people that had been diagnosed in the past
with Fibro by a doctor(s) found they had limited solutions for them(anti-depressants, pain meds.)
What I found was people that were considered to have Fibro, had 14 or
more of the following issues that would affect their lives.
They include: Anxiety, Arthritis, Asthma, Attention Deficit, Autism, Brain Fog, Carpal tunnel, Colds, Flu,
Constipation, Diarrhea, Colitis, Crohn's, Depression, Chronic Fatigue, Fibromyalgia, Food Allergies, Hives, Eczema, Hypoglycemia, Hypothyroidism, Insomnia, Interstitial Cystitis, Leaky
Gut, Migraines, Mitral Valve Prolapse, PMS, Prostatitis, Sinus infections, Ear Infections
They would all usually score over 400+(very elevated) on the candida test(long form) by Dr. W. Crook M.D.
Most were female, 35 and older and in many cases the stress trigger was thought to be physical in nature, prior to their diagnosis.
Myself frequently visiting health chat rooms, noticed the most
asked about health problem was Fibro. Most people that had been diagnosed in the past
with Fibro by a doctor(s) found they had limited solutions for them(anti-depressants, pain meds.)
What I found was people that were considered to have Fibro, had 14 or
more of the following issues that would affect their lives.
They include: Anxiety, Arthritis, Asthma, Attention Deficit, Autism, Brain Fog, Carpal tunnel, Colds, Flu,
Constipation, Diarrhea, Colitis, Crohn's, Depression, Chronic Fatigue, Fibromyalgia, Food Allergies, Hives, Eczema, Hypoglycemia, Hypothyroidism, Insomnia, Interstitial Cystitis, Leaky
Gut, Migraines, Mitral Valve Prolapse, PMS, Prostatitis, Sinus infections, Ear Infections
They would all usually score over 400+(very elevated) on the candida test(long form) by Dr. W. Crook M.D.
Most were female, 35 and older and in many cases the stress trigger was thought to be physical in nature, prior to their diagnosis.
You're giving people with real problems a bad name. Even patients with somatoform disorder think you're nuts.
#89
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Nobody is denying you the pain you feel, but FM is the easy diagnosis that physicians give when they cannot find anything else. As toddbiker stated above, there are many other diagnoses that mimic FM and vice versa. At my facility, most of the FM patients are obese middle aged women who are addicted to pain killers which is consistent with the patient profile across the country diagnosed with FM.
#90
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The authors reported that consistent with previous studies, obesity is common among those with fibromyalgia. Half the study sample was obese and an additional thirty percent were overweight. Also consistent with previous findings, obese patients in this study showed increased pain sensitivity, which was more pronounced in lower body areas. The obese patients also had impaired flexibility in the lower body and reduced strength.
The study concluded that obesity is a common comorbidity of fibromyalgia that may compromise clinical outcomes. The adverse impact of obesity is evidenced by hyperalgesia, disability, impaired quality of life and sleep problems. The authors also noted that recent evidence suggests weight loss improves fibromyalgia symptoms, perhaps resulting from patients adopting healthier lifestyles and taking more positive attitudes toward symptom management, and overall quality of life.
https://www.sciencedaily.com/releases...1230113253.htm
The study concluded that obesity is a common comorbidity of fibromyalgia that may compromise clinical outcomes. The adverse impact of obesity is evidenced by hyperalgesia, disability, impaired quality of life and sleep problems. The authors also noted that recent evidence suggests weight loss improves fibromyalgia symptoms, perhaps resulting from patients adopting healthier lifestyles and taking more positive attitudes toward symptom management, and overall quality of life.
https://www.sciencedaily.com/releases...1230113253.htm
#92
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The authors reported that consistent with previous studies, obesity is common among those with fibromyalgia. Half the study sample was obese and an additional thirty percent were overweight. Also consistent with previous findings, obese patients in this study showed increased pain sensitivity, which was more pronounced in lower body areas. The obese patients also had impaired flexibility in the lower body and reduced strength.
The study concluded that obesity is a common comorbidity of fibromyalgia that may compromise clinical outcomes. The adverse impact of obesity is evidenced by hyperalgesia, disability, impaired quality of life and sleep problems. The authors also noted that recent evidence suggests weight loss improves fibromyalgia symptoms, perhaps resulting from patients adopting healthier lifestyles and taking more positive attitudes toward symptom management, and overall quality of life.
https://www.sciencedaily.com/releases...1230113253.htm
The study concluded that obesity is a common comorbidity of fibromyalgia that may compromise clinical outcomes. The adverse impact of obesity is evidenced by hyperalgesia, disability, impaired quality of life and sleep problems. The authors also noted that recent evidence suggests weight loss improves fibromyalgia symptoms, perhaps resulting from patients adopting healthier lifestyles and taking more positive attitudes toward symptom management, and overall quality of life.
https://www.sciencedaily.com/releases...1230113253.htm
Or did you have some other point?
Notice that there's no question whether the diagnosis of FMS is "real" or not, or whether it's caused by yeast, bacterial overgrowth, bad humours, "the vapours", or phases of the moon. I can't access the whole article right now, but I'm sure they had some diagnostic criteria for the syndrome, given that it's all science-y and stuff.
And, "correlation is not causation". Right?
#93
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This is your facility? You're one of the authors of the study?
Or did you have some other point?
Notice that there's no question whether the diagnosis of FMS is "real" or not, or whether it's caused by yeast, bacterial overgrowth, bad humours, "the vapours", or phases of the moon. I can't access the whole article right now, but I'm sure they had some diagnostic criteria for the syndrome, given that it's all science-y and stuff.
And, "correlation is not causation". Right?
Or did you have some other point?
Notice that there's no question whether the diagnosis of FMS is "real" or not, or whether it's caused by yeast, bacterial overgrowth, bad humours, "the vapours", or phases of the moon. I can't access the whole article right now, but I'm sure they had some diagnostic criteria for the syndrome, given that it's all science-y and stuff.
And, "correlation is not causation". Right?
#94
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You're right that correlation in not causation, but the way I see it, a disease has more legitimacy if it affects people across a spectrum (ie. cancer, AIDS etc). If young, active and incredibly fit people suffered from Fibromyalgia at same rate, I'd concede more legitimacy of diagnosis. But the fact that 75% are overweight to obese should tell you something. C'mon, broaden your interpretations a bit and just don't accept what physicians and drug companies are selling you.
Maybe they're overwight because they are inactive, or depressed because their life has gone to ****, or that they self-medicate their pain with food? Or maybe there's an intermediate variable that causes both conditions, like an immune-mediated disorder or a metabolic condition?
Wonder how fat you'd get if you couldn't exercise?
I'm beginning to believe your role in health care is an administrative one.
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Seriously? That's your definition of a "legitimate" disease? That healthy people get it?
Maybe they're overwight because they are inactive, or depressed because their life has gone to ****, or that they self-medicate their pain with food? Or maybe there's an intermediate variable that causes both conditions, like an immune-mediated disorder or a metabolic condition?
Wonder how fat you'd get if you couldn't exercise?
I'm beginning to believe your role in health care is an administrative one.
Maybe they're overwight because they are inactive, or depressed because their life has gone to ****, or that they self-medicate their pain with food? Or maybe there's an intermediate variable that causes both conditions, like an immune-mediated disorder or a metabolic condition?
Wonder how fat you'd get if you couldn't exercise?
I'm beginning to believe your role in health care is an administrative one.
I realize that what I am saying is not politically correct and lacks sensitivity and empathy, but I don't see any difference between abusing your body with food and suffering the medical repercussions and the chronic smoker who after 35 years of smoking complains about their emphysema.
Are you surprised of Obesity and Fibromyalgia increase in this country over past 20 years or so?
https://www.youtube.com/watch?v=ZaAt8...eature=related
#96
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We need to get back to the original post.
"The point of this is post is not my story but for help/advice.
I was wondering if there is any cyclists who race and train hard out there, who control their symptoms.
I just want to control my muscle cramp/pain.
Please let me know, thank you."
OR thread will be moved to FOO>
"The point of this is post is not my story but for help/advice.
I was wondering if there is any cyclists who race and train hard out there, who control their symptoms.
I just want to control my muscle cramp/pain.
Please let me know, thank you."
OR thread will be moved to FOO>
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#97
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We need to get back to the original post.
"The point of this is post is not my story but for help/advice.
I was wondering if there is any cyclists who race and train hard out there, who control their symptoms.
I just want to control my muscle cramp/pain.
Please let me know, thank you."
OR thread will be moved to FOO>
"The point of this is post is not my story but for help/advice.
I was wondering if there is any cyclists who race and train hard out there, who control their symptoms.
I just want to control my muscle cramp/pain.
Please let me know, thank you."
OR thread will be moved to FOO>
Get another opinion becuase you got a long life ahead and you should not be given a diagnosis that will become a self fulfilling prophecy. This IMO is the most helpful advice so far in this thread.
#98
Senior Member
You're right that correlation in not causation, but the way I see it, a disease has more legitimacy if it affects people across a spectrum (ie. cancer, AIDS etc). If young, active and incredibly fit people suffered from Fibromyalgia at same rate, I'd concede more legitimacy of diagnosis. But the fact that 75% are overweight to obese should tell you something. C'mon, broaden your interpretations a bit and just don't accept what physicians and drug companies are selling you.
So we are to assume scleroderma, fibromyalgia, gallbladder disease, lupus, rheumatoid arthritis , etc. etc. etc. are all "illegitimate " diseases because they occur in female's. Are you even a doctor?
#99
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To the OP, are you really a college aged student (18-22) who was diagnosed by a physician with Fibromyalgia???
Get another opinion becuase you got a long life ahead and you should not be given a diagnosis that will become a self fulfilling prophecy. This IMO is the most helpful advice so far in this thread.
Get another opinion becuase you got a long life ahead and you should not be given a diagnosis that will become a self fulfilling prophecy. This IMO is the most helpful advice so far in this thread.
Yes they thought it was a autoimmune diease so they tested me for that, and that came up all neg. so my doc. thought it was depression, then after she ruled that out she figured it was FM.
Im a college student (22)who is 6-1.5 and 158 lb. I use to be able to climb like a goat ha and now when I ride hard or long I get a cramp like pain in my legs. I usually get really bad morning aches and pains when I awake everyday. Poor sleep as well...working on that.
Honestly I hope it is something else than FM becasue I want/will find a way to ride competitively again...
I love to ride
Last edited by UpHill101; 11-15-11 at 08:01 PM. Reason: spelling agian...
#100
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You need to stop typing, the hole you are digging is just getting deeper.
So we are to assume scleroderma, fibromyalgia, gallbladder disease, lupus, rheumatoid arthritis , etc. etc. etc. are all "illegitimate " diseases because they occur in female's. Are you even a doctor?
So we are to assume scleroderma, fibromyalgia, gallbladder disease, lupus, rheumatoid arthritis , etc. etc. etc. are all "illegitimate " diseases because they occur in female's. Are you even a doctor?
Forget about the contradiction in saying that people shouldn't believe in FMS because the "physicians and drug companies" get something out of pushing this "illegitimate" condition as "real", and then bases that on the opinions of phsyicians he knows.
I'm guessing he works in admissions, research assistant/data entry, or clerical job in a staff office somewhere in the hospital.
On topic: see my original post for suggestions for dealing with the problems.